All of us Vs Keratoconus

Members Login
Chatbox
Please log in to join the chat!
Post Info TOPIC: My Keratoconus Experience from Diagnosis to Intacs and Cross Linking
Anonymous

Date: Sun Jan 8 11:16 PM, 2017
RE: My Keratoconus Experience from Diagnosis to Intacs and Cross Linking
Permalink   
 


I received an intact in my left eye and cross linking on both eyes. I am now a week out of surgery and my vision is still very poor. Worse than it was before the surgery. I'm starting to worry a little bit as school is starting up again I don't want to struggle taking notes. Any idea when my eyes will atleast go back to normal? Thanks

__________________
Anonymous

Date: Tue Jan 17 4:32 AM, 2017
Permalink   
 

Hi all I am going into surgery to have intacs, cross linking and CK done in my right eye and cross linking in my left eye. After reading all these reviews I'm starting to worry and thinking of backing out. My ophthalmologist has very good reviews but I can't help but think those reviews were somehow bought or not legitimate. My right eye is very very poor and I can't imagine it worse, however from some of these reviews apparently I think it can be now. Do you guys recommend me going through with the procedure or backing out? Thank you

__________________


Veteran Member

Status: Offline
Posts: 53
Date: Tue Jan 24 12:06 PM, 2017
Permalink   
 

Most people post are like you, when they are at your stage and when there are problems before or during the recovery of treatment...however when things have settled down and healed and the final result has been reached, they go to live their lifes as things are ok now for them.



__________________
Anonymous

Date: Fri May 5 7:44 PM, 2017
Permalink   
 

Hi KC - I know it's been a while since the original post in 2011, but I was wondering if you could provide an update as to how you are doing after all this time? I am considering the same procedures (INTACs in left eye, cross linking in the right eye), and am worried about recovery time and long term efficacy.

 

Really appreciate any reply and update!



__________________
hzc

Date: Thu Jun 29 4:24 AM, 2017
Permalink   
 

Hi guys! I got intacs in my left eye about 9 months ago now. At first, my vision was getting better and improving with every doctor visit once a month. About 3 weeks ago I had a checkup and my astigmatism has gotten worse at least 1 diopter. I now also have farsightedness which I never had before. I'm wondering if this is normal for the eye to bounce back and forth or is it going to just keep getting worse? And is it common to develop farsightedness from the surgery? What is everyone else's experience months after surgery? any feedback would be appreciated!

__________________
Anonymous

Date: Wed Nov 22 7:37 PM, 2017
Permalink   
 

Thank you soooo much for this review it was very helpful

 



__________________
Revonae Ray

Date: Wed Dec 6 2:23 PM, 2017
Permalink   
 

AS I READ THROUGH YOUR EXPERIENCE AND THE COMMENTS BETWEEN YOU AND NIKKI MY HEART FELT THE BIGGEST SIGH OF RELIEF. YOU DO NOT UNDERSTAND HOW MUCH RESEARCHING I'VE BEEN DOING ON KERATOCONUS, SINCE I WAS DIAGNOSED WITH IT IN 2014. I HAVE BEEN IN THE DUMPS SO LONG LOOKING FOR HELP TO GET THE PROCEDURE DONE. UNTIL RECENTLY MY MOM WAS ABLE TO PUT ME ON HER MEDICAL BENEFITS TO GET MY EYES DONE. NOW TO COME ACROSS YOUR STORY AND TREATMENT OUTCOMES I AM EXTREMELY HAPPY. ALL THE ANSWERS I'VE BEEN LOOKING FOR YOU HAVE RIGHT HERE. I WILL BE SEEING MY OPHTHALMOLOGIST THE END OF THIS MONTH AND I CANT WAIT TO GET THE PROCEDURES SONE NOW. THE ONLY THING IS I AM HOPING I CAN GET EVERYTHING DONE BEFORE MY 25TH BIRTHDAY IN SEPTEMBER BECAUSE HER INSURANCE WILL NOT COVER ME AFTER MY BIRTHDAY AND I KNOW HOW EXPENSIVE KERATOCONUS CAN BE. SO I THANK YOU SO MUCH FOR SHARING YOUR STORY THAT I HAVE FINALLY COME ACROSS, BECAUSE THIS IS THE BEST NEWS I HAVE EVER READ!!.. ;)

__________________


Veteran Member

Status: Offline
Posts: 60
Date: Thu Dec 7 5:07 PM, 2017
Permalink   
 

Revonae Ray, If you are in the US, consider getting individual EyeMed Bold or Humana vision insurance. Either provides 100% coverage for medically necessary contact lenses. Corneal cross-linking is primarily to stop the progression of keratoconus, which is the first step. Then you are likely to need a vision correction. I would investigate Intacs thoroughly before choosing that route. The sense I get from reading users' experiences with them is that they are somewhat invasive and don't always work as well as one would hope. Getting fit with medically necessary contact lenses is time consuming and expensive. But, if they don't work out, it is highly unlikely that they will leave you any worse off. If you can get a good fit with contact lenses, the results can be miraculous. I hope all goes well for you and you can get on with your life in which keratoconus is a nuisance not an impediment.

__________________
«First  <  14 5 6 7  >  Last»  | Page of 7  sorted by
 
Quick Reply

Please log in to post quick replies.

Post to Digg Post to Del.icio.us

www.kcfreedom.org

Knowledge Works