All of us Vs Keratoconus
Can anyone give list of doctors in US doing PRK and CXL please. I live in Los angeles and I know 2 here Drs. Boxer wachler and Rabinowitz. I dont think Wachler does PRK.
I realize Dr K in Athens does more of these than anyone. I will make the trip if people on the forum really recommend he is the best.
Dr Cummings in Dublin, Ireland is well known for this and the clinic is at the crossroads of many new developments.
Another factor is, just like with most things, the equipment used matters, and in this case the Laser and diagnostic platform used.
I hope your are in the scope to have the treatment you wish, however a particular treatment may not be possible depending of your own unique corneal configuration, it might be even the case an combination of treatments may even be the right option. However the thought is if a patient does well in contacts then it might be better to continue this way although most of the options (contacts or surgery) work well when KC is less advanced.
Contacts and surgery can get more complex, the more advanced KC has become.
Amongst other things, you should also think about what the next treatment might be if a treatment you and your Dr has opted for has not worked out.
And with this, it is always better to go the least invasive route first.
Dr BBW does epi on, he is against taking the epi off but in PRK you have to take the epi off! I thought Dr R was doing partial PRK as a study on those who are on a transplant list, with it being a transplant could be done if still needed.
hi a2000, hi all,
i had a topoPRK+CXL performed by Dr Kanellopoulos in Athens, 2 months ago and i am very satisfied.
It seems that in this field, dr K. is one of the most (if not the most) experienced all over the world.
Professionalism, self confidence, state of the art technology (pentacam, wavelight ex500, avedro kxl) and more than 1.500 cxls performed during the last 10 years.
In my opinion, dr K. is a very reliable option for a very severe treatment.
You can watch 4-5 very interesting videos referred to the Athens Protocol on youtube.
Thanks Nassos for the reply. I have contacted Dr. K and sent my corneal maps for review. I have looked at pretty much every option and I think PRK with crosslinking is probably the best and Dr K the most qualified to do it. Corneal thickness is 413and 444 and both clear without any scarring, hopefully enough to atleast obtain BSVCA 20/20. I wear sclerals now giving 20/30 and 20/20. Like I said I have tried Boxer Wachlers C3R 4 years ago but there has been a slight progression. He offered to crosslink again but I wanted to pursue PRK as it would atleast decrease dependence on GPs. I have looked into Keraflex as well but I am not convinced about it as conductive keratoplasry even in normal corneas that are adequately crosslinked regress as time goes on. I am curious as to the longest followup on the PRK CXL procedure. Perhaps Zeus, cloudd and DEFPOTEC can comment on their vision now. The pubmed literauture by Kanellopolous is very convincing. Waiting to hear from everyone here.
Try PM-ing them, I have found they go online about their KC less and less, just as much as their KC troubles have become less and less for them.
I hope you the best with any treatment you are comfortable with underttaking and are found suitable for.
There are a number of people who post here and then disappear. I too wonder what their outcomes have been.
My perspective on your problem is as a mother of a KC patient, not someone with KC.
You may not like what I have to say, but here goes anyway. If you have 20/20 vision in one eye and 20/30 in the other with lenses, I would advise against any more procedures now.
Most people here would be delighted to have corrected vision like yours. Why risk it?
Best of luck with your choices.
Thats a very valid concern Emily. But my KC has progressed slightly despite epi-on crosslinking. I have to get crosslinking again epi-off according to surgeons here in the States. I would rather do the PRK option as well if I can have uncorrected 2020 or even bscva 2020. I personally would not have done epi-on in hindsight. But I am really optimistic about the athens protocol. To have uncorrected or spectacle corrected 20 20 makes such a difference in quality of life.
And I also do not want to wait while my cornea thins to less than 350 and the window is forever closed.