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Post Info TOPIC: My CXL + T-PRK experience in Canada
Anonymous

Date: Wed Jan 13 12:52 AM, 2016
RE: My CXL + T-PRK experience in Canada
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jgcpalmer - any updates? I am at my 6 month mark and lack of vision clarity is driving me nuts. My vision is worse than before prk and cxl procedure. Concerned. They are now putting me on steroids.

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Posts: 59
Date: Wed Jan 13 12:53 PM, 2016
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Thanks for the nudge - I guess I haven't updated this in a long time.

In the summer I did get a slightly updated prescription and got myself transition glasses. I still have light sensitivity issues, but am finding my transition glasses are enough to deal with them, except when driving, when I still need sunglasses unless things are really dark and cloudy. At this point I've resigned myself to the fact that my issues are never going away. I still have ghosting issues, but the glasses help and I think over time I've more or less just gotten used to how my vision is, and I don't find myself every day thinking about my vision issues. I still have some dryness issues, but not quite as bad as the last time I posted. I still am taking Restasis every day, although at this point I'm not sure the drug aspect is really doing anything and it more just helps as something that moistens my eyes.

That things can still improve after the 6 month mark, and that the most important part of the surgery is the CXL part, and if your Keratoconus is no longer progressing, then in the long run, your surgery is still an overall success. But I can completely understand your frustration at not having great vision. It seems that everyone I talked to, and most stories I read, were all about big success stories where vision was perfect at the end, and it seems like there are in actuality a large portion of us where that's not the case. But don't give up hope yet - it may just be that you have a longer journey to get there than many do.

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Anonymous

Date: Sun Mar 20 9:40 PM, 2016
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I too will be getting the procedure done. I am so scared right now that I'm having panic attacks. My issue is that I'm a single mom.of 2 and I don't have family here in Ontario. I will be asking my mom to stay with me for a while of course. My concern is that I am having these panicked visions of being home bound and unble to drive or look after my kids or myself. Am I panicking here and just thinking of the worst case scenario? It sounds like the recovery period is months and months!

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Date: Sat Mar 26 3:27 PM, 2016
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Anonymous wrote:

I too will be getting the procedure done. I am so scared right now that I'm having panic attacks. My issue is that I'm a single mom.of 2 and I don't have family here in Ontario. I will be asking my mom to stay with me for a while of course. My concern is that I am having these panicked visions of being home bound and unble to drive or look after my kids or myself. Am I panicking here and just thinking of the worst case scenario? It sounds like the recovery period is months and months!


 

Hi there.  Within a couple weeks of of the surgery, I was working part time from home, and a couple weeks after that, I was back in the office.  Your eyes will keep improving and changing for months, that is true, but it will be much sooner when you can see well enough to get around, watch over your kids, etc.  How soon you can drive will depend on how quickly your eyes heal, and whether you can get contacts or glasses to help you out.  My optometrist was nice enough to give me all the free samples of contacts that I needed to keep me going - my prescription was changing too much to make glasses affordable.  So it will depend on your situation.  

I know I felt panicked because I thought I would be more or less blind for a week, but that is not the case.  Things will just be very blurry, and it improves over time.  The first week is the worst as your epithelium heals, but then after that you will be able to see enough to do pretty much whatever basic tasks around the house you need to do. 



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Anonymous

Date: Fri Sep 16 1:23 AM, 2016
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I had the PRK and cross linking about 14 months ago. Its been a rough road but some aspects have improved over time. I had my 1 year checkup and it looks like my vision has stabilized although my vision is worse than it was before the procedure. I need my glass now 100% of the time where beforw i was only wearing them for distant reading. Thats disappointing especially since i was told that it would improve but no one told me the risk that the laser might increase my short sightedness. But from a keratoconus prospective, the procedure was a success. But in hindsight, i probably didn't need the procedure since i am around 40 and it would have stabilized. The place i got it done, seem more concerned about thier stat and money than the people. So my advice is to really think hard about doing prk and crosslinking before going ahead with it. Plus the recovery is longer than they told me.

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Anonymous

Date: Fri Dec 2 4:15 PM, 2016
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Hi, i jave kc 7.7 on right eye, I'm scheduled for epi off crosslink....can they do prk after, should i postpone or what do you think? Just an aproximation please

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Date: Wed Dec 7 6:23 PM, 2016
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Get a consultation with a clinic which does laser for KC. As you know its usual for crosslinking to be done after laser. I guess doing crosslinking before laser will mean another crosslinking is advisable afterwards as well....which means two doses...which can be avoided, as well as the laser removoing some of the crosslinking effect if crosslinking is done before laser surgery. Its good you have done your patient research.



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Laura

Date: Mon Feb 6 6:39 PM, 2017
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My son has KL done in Germany, 1 year ago. Healing time and hazel, and everything was pretty the same, as people are describing here. But, only they were absolutely against the Lasic. They said it can be dangerous to my son. No idea if it's only his case. Or not.. now, 2 year, later, he is wearing glasses, enough for him. Don't want to go for vision correction.. May need our experience will be useful. But, does anybody know,why in Germany,they are not doing 2 procedures together, even if they made KL first . At 2004.

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