Alright so this is my warning to you guys after four years of pure hell from two botched crosslinking procedures. You can choose to do what you want with your eyes, but these are things I wish I knew before I proceeded down this rabbit hole made of nightmares that has destroyed my career and life and left m...
Hi. I am a KC patient and I had crosslinking and an intac a few weeks ago with good results. That said, I still need glasses all the time for astigmatism/myopia, which I HATE wearing. The opthalmologist/KC specialist said I would be a candidate for CK now and possibly PRK in the future given my goal to not...
I had Epi on 7 months ago in my right eye. Day vision outdoors is better than before but I think night vision / indoor vision / ghosting is noticeably worse than before. I felt that about 3 months after the surgery my vision was almost similar to before the surgery but has deteriorated little after that. I...
I've been suffering from Kerataconus, Very mild. I am able to get buy with soft lenses and glasses. I've been doing a ton of research about the C3-R procedure and it seems so stupid I can do it myself. I've heard of some people doing this with success and Im wondering if anyone has heard the same. The pro...
How I regress my keratoconus with three simple treatments. Postive thinking always remember keratoconus is a physical problem. Once it becomes mental it then cases suffering. Two eat right take care of your body by eating more vegetables and greens. For surgar eat fruits. Drink plenty of water and...
Hello all, First of all I would like to say that I have learned a lot on this forum prior to my surgery and I owe a big thanks to everyone who has contributed as it was one of the best sources I had that helped me understand what I was going through and also analyse which option seemed best fit for my situation....
Hi! I just joined to this awesome forum and I have some questions about very strange phenomenom. I am 18 years old keratoconus patient. I was diagnosed 3 years ago, I am after CXL on my right eye (one year ago). My left eye is fine right now, visuale acuity is good and I can see clearly without any correctio...
I live in the US. I was first diagnosed with Pellucid Marginal Degeneration which is very similar to Keratoconus about two years ago. My Optometrist struggled to fit a scleral lens on my eye for the better part of one year. It was just a very slow process because every time it did not fit correctly, a...
Hi everyone- I am new to this forum. I was diagnosed with KC at 19 years of age. I wore glasses for a couple of years after diagnosis until my night vision became really bad. I then switched to RGP lenses which worked well for a while, but then started scratching and irritating my eyes. My optomestrist...
I went in for regular eye exam as I do every year to year and a half. The eye optometrist said he could only get me to 20/30 vision and suspected I might have distortion in my cornea(s). They did an eye mapping and found that I do have corneal distortion. He said mine is more rare in that it's in the center of...
Hello, I'm Ahmed, 29 from Egypt. I was diagnosed with keratoconus in March 2015 in both eyes (Right eye grade 2 - left eye grade 1). Background: I don't like to wear glasses so in the age of 23 I was supposed to wear one so I put it for like one month and then kept it in the home. But my vision started to go down...
I have keratoconus. If you are reading this, you probably have it too, or know someone who does. It is an extremely frustrating disease that progressively distorts your vision until, often times, inevitable corneal transplant is performed. Inevitable, that is, until corneal cross linking, an ex...
Hi, I am new here. It is for my sister I am writing here. It was three days before that she was diagnosed with keratoconus. She is having blurry vision , severe headaches, increased eye sensitivity and eye strain. She is not able to drive at nights and this is really troubling her night drives from offi...
I got diagnosed with Keratoconus at age of 20 and the doctors told me to use stable contact lenses. In my case I am almost intolerant to lenses and my eyes become very red. Despite this, I used lenses for 4 years. Many times I could have pain if I had my lenses on, it felt as if someone skratched my eye with a kn...
Hi everyone I I was wondering if anybody could tell me about scolara lenses I'm new to them I haven't been properly fitted with them yet working on it I would like to know if you think they're good if you think they're great or if you just think they stink would be happy to hear some feedback thanks so much
Hi all am new here. Just want to share my experience and see if anyone can relate to. Im 33 male about 10 years ago i had what i know now as a bit of a panic attack and vision went blurry etc. I didnt know what was going on with me and went to doctor he said i could be depressed and put me on medication. This has gone...
I do wear scleral lenses for 4 years. Now I am in need of new pair and we recently moved to Dallas. So if anyone know any good contact lens fitter than please let me know. Thank you.
I am suffering from Keratoconus in both the eyes. My left eye is impacted more and is under observation of an ophthalmologist taking keratoconus treatment from a nearby clinic in Abbotsford. But I recently read in an article that keratoconus can be because of genetic disorder. I am worried about...
I have Keratoconus and I’m having corneal transplantation done next month after consulting and discussing with my tacoma ophthalmologist at Evergreen eye centre nearby, and I’m wondering if anyone has had this done? Even though the procedure is expensive, I need to get it done soon as I am facing w...
Hi all, now I live in Mississauga, Ontario, Canada and I have keratoconus in both eyes. From Greece, I have found the best contact lenses for my eyes. I use piggy - backs (this is a two lens system; an RGP lens worn on top of a soft lens). But my right eye still has problems. In the left one, I have excellent co...
Hello All, I had Epi-On CXL performed about 5 weeks ago (left eye only). Since the procedure I have been very conscious to not touch or rub my eyes. The doctor provided me with a plastic eye shield to wear the first few days to protect my eye (I have to put a few pieces of tape on it and stick it to my face, not ve...
Hey All- Not sure how this works or if I am doing it right, but I just had some Kerarings placed and wanted to hear some other people's experiences. I am 31, Dx at about 16, bilateral KC, now moderate. Tested 20/20 both eyes until I hit about 27, then for the last two years I could tell my vision was changing r...
I am 33 and was diagnosed with keratoconus last fall. I went back to my doctor a couple weeks ago and it progressed a lot. She sent me to Dr. Donnenfeld in Fairfield, CT. He said I should have the epi-on crosslinking done to keep whatever vision I have.I feel so confused, because if I have to have this, I wan...
Hi, I'm scheduled to have intacts in both eyes and cross-linking in my left eye also at the same time. My doctor said it would all be pretty painful but only for a few days. My pain threshold is pretty low and so, I'm extremely nervous about what this might mean for me. Can anyone share their experienc...
Hello, I am a newly diagnosed KC patient. I was diagnosed at 24 years old in October of 2015. My eye doctor noticed that my astigmatism in my left eye had jumped dramatically from my last eye exam in August of 2014. He examined my eyes and noticed a small bit of corneal hazing. At this point, I had been weari...
i hve been waiting about 14 years to get my intacs and now debating keeping them. I have had one in my right eye for the past 13 years and it is not my dominant eye and tough it helped in minor ways I have always been dependent on my left eye. I had the intacs in my left eye placed two weeks ago. Though it flatten...
Hello and thanks for reading this!.... So, last month I went in for a consult for lasik eye surgery and after some tests was told (to my surprise) that I have Keratoconus. The following week I went for a second opinion to a cornea specialist, who confirmed the diagnosis. I was told by the specialist it is...
i had the tg prk surgery combined with cxl 5.5 months ago By dr Greg moloney in Sydney. My vision has gone from an uncorrected vision of 6/38 metric to 6/12 during that time . prior to the surgery I could only see through hard contacts but now i can get to 6/7 in glasses or soft contacts. but at an uncorrectE...
Hi all I wanted to share my experiences with people with the hope that a cure and cause for this disease will be identified soon. Also, people in India are not aware of the disease and it may go unnoticed until its too late. My experience with this disease has been strange as I never knew I had it. I am a 30 yea...
I was diagnosed with advance KC in 2006 While my regular eye check up for glasses. When I hear first time I didn't know even what is Keratoconus. Doctor made me understand what it is and he told me I won't get good vision with glasses any more, I need to see a contact lens fitter to try hard lens for good visio...
I had Epi-On Cross Linking done at Slade and Baker Vision in Houston, TX Dec 2014 on my left eye. I was given valium and than ribovalin drops were put in my eyes for an hour by a nurse, the doctor came in to check the absorption and than left the room leaving the procedure in the hands of the nurse. The doctor...
Again, I was diagnosed in April and after struggling to learn how to put on eye drops on my own and wearing contact lens on my own, I finally could and I've been wearing contact lens for almost two months and my optometrist told me that my eyes are finally fine. The progression is there but it has been contr...
Hi. I've just diagnosed with keractoconus on May actually but it began to process in April. It was finally diagnosed after swells of investigations from doctors and specialists. And during the investigation, I was at first assumed with "probable keractoconus" because I was being dila...
Hi everyone! This is my first post ever... The reason why I created an account us, of course, KC, but also the question I cannot find a good answer for. I was diagnosed with KC just few weeks ago. I was told that KC had progressed really intensively, and no RGP will help my left eye... But I didn't notice an...
My 17 year old son was just diagnosed with kerataconus last month. We went to Dr. Peter Hersh, a doctor, who is running clinical trials for cross-linking. He felt that my son was an excellent candidate for cross linking. He did not have room in his study for anyone else under 18. However, when we go ba...
I am diagnosed with Keratoconus. I have been facing with vision loss, blurred vision and halos, just to name a few difficulties that comes with it. The last consultation with my Tacoma eye doctor at Evergreen Eye told me that a permanent solution for my condition is to get a corneal transplantation do...
Hi people )I started getting some blurry vision 2weeks ago and quickly booked an appointment at specsavers. I dont where glasses altho i think i should have needed them for last few years but never really bothered me.I had an eye test and did terrible and was told would need some glasses and she also wro...
I will start off by giving a little bit of history about myself, and my eyes, then the experience itself. I am a 29yr old male, living in Kitchener Ontario Canada. I was diagnosed with Keratoconus in 2003 shortly after starting university. Truthfully, i had not even noticed any vision loss until i w...
Hi all, Been reading the forum for a while since I was told I would need to get CXL. I was wondering if you guys suggest doing one eye or both eyes at a time. When I was in high-school I started to wear glasses. I wore them very infrequently because I only ever really had trouble seeing the projector if I sat f...
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