Keratoconus Sciences - www.KCFreedom.org

DigiKera · DigiKera

I plan to create a database of keratoconus treatments, which includes clinical outcomes (refrections, HOA's, keratoconus progressions, etc), inclusion and exclusion criteria, complications & risks, etc. Of course, all of the information will include medical references. This is so ker...

Hari · Hari

Hi all, Just wondering if anyone out there has had any direct experience with (or any knowledge of) stem cell treatment for Kerotoconus/ damaged corneas? Stem cell treatment seems to be the quackery flavour of the mouth for healing everything from autism to baldness but this corneal treatment seem...

DigiKera · DigiKera

Under research: Continuous Wave Infrared Laser Laser tissue welding in corneal transplant Cornea reshaping eye-drops Under clinical trials: XtraFocus pinhole implant Corneal Allogenic Intrastromal Ring Segments (CAIRS) Corneal Tissue Addition for Keratoconus Hyperopia Intracorneal S...

Alexander · Alexander

Hello all, I am new to the site here which I luckily stumbled upon. I will try to be to the point and explain what I wish to convey in my disucssion here. - I have just been diagnosed a couple months ago having KC - For some years I've lived with inadequate vision and eye glasses have only enabled me to instead...

BionicEyes · BionicEyes

Ryan LeClair · Ryan LeClair

Hello, I'm a new member here. I was just wondering if anyone here has undergone the cross-linking procedure while under the effects of IV sedation? My eyes are too sensitive for me to undergo the cross-linking with only the help of Ativan; I need IV sedation if I am ever going to fix my keratoconus. I hav...

Wayne · Wayne

SOOFT italia S.p.A. Receives CE Mark Certification for Its 'Iontophoresis Device for Corneal Cross-Linking' Mar 25, 2013 (Close-Up Media via COMTEX) -- SOOFT italia S.p.A., a company of OOgroup, announce the worldwide launch of its "Device and method for Corneal delivery of Riboflavin by Ionto...

magaretoonline · magaretoonline

Hello everybody, a senior ophthalmic surgeon Dr. Samir Quawasmi presented a new approach for the treatment of keratoconus (http://drsamirquawasmi.com/en/tv.html) some months ago. Have you heard of it? I don't know Arabian. Could someone transalte a summary of it into English, please? ...

Emily_G · Emily_G

Somewhere on the Internet I read about the scientific history of crosslinking. Maybe it had to do with animals. I know I read it somewhere, but cannot find it again. When people hear that the crosslinking procedure involves Vitamin B2 (riboflavin) and ultra-violet light, they ask how this was disc...

Darragh · Darragh

Hello I had both my eyes cross linked last year, I have seen no improvement in vision, my doc told me that my eyes are improving that they are becoming more flat, I was told before any procedures that I'm not suitable for laser as my cornea is too thin, I'm not happy with my results because my vision is still...

Dineshk · Dineshk

http://www.bioportfolio.com/news/article/271156/Avedro-s-Kxl-System-Receives-The-European-Ce-Mark-For-Corneal-Collagen.html Avedro, Inc., sponsor of two completed US FDA multi-center clinical trials for corneal cross-linking, today announced that its KXL™ System for perfo...

metallic2010 · metallic2010

Hi, mabye interesting for some of you. Hope research goes on.... http://www.cxlcongress.com/2011CXLprogram.pdf http://www.cxl-congress.org/ Andi

Dr David Jory MBBS FRCOphth · Dr David Jory MBBS FRCOphth

Update on keratoconus treatments Introduction Keratoconus and post-LASIK ectasia treatment has become interesting to ophthalmologists at last. The recent 6 th Corneal Collagen Crosslinking meeting in Milan was the best attended ever with over300 surgeons present. Special inter...

drgoren · drgoren

Stage II Keratoconus One Month Control Examination Pre-operation UCVA: OD = 20/200 OS = 20/60 Post-operation UCVA: OD = 20/40 OS = 20/22.5

BionicEyes · BionicEyes

http://sciencemode.com/2007/10/05/artificial-cornea-to-be-clinically-tested-in-early-2008-thousands-hope-for-success/-- Edited by Chris_NZ at 09:43, 2007-10-07

ccormier77 · ccormier77

Hello All, Just wondering if anyone has heard of CK Radiofrequency for Advanced Keratoconus? Stumbled upon an abstract to an interesting article and a video. Can anyone access this article without having to pay for it? Any thoughts on this technology? http://www.jcrsjournal.org/article...

alihekmat · alihekmat

Hello everybody, Does anybody has any idea or experience of crosslinking after corneal grafting?

drgoren · drgoren

The European Society of Cataract & Refractive Surgeons recently held their winter meeting in Budapest. During the first day of the conference there was a symposium on keratoconus. Topics discussed included genetics, diagnostics, cross-linking combined with excimer surgery, Intacs, and...

SR · SR

My bottom-line question is: are there any more promising treatments for advanced and progressing keratoconus of this degree -- less than 300 microns which apparently is a typical cutoff for CxL in the U.S. which, at least in this area, seems more liberal -- that are more likely to halt the disease pro...

fs · fs

A comprehesive nutritional protocol for keratoconus Optometric Management, Mar 2000 by Freedman, Joseph M Keratoconus slowly robs young people of their vision and creates a multitude of other problems. Fortunately, a flurry of research is now shedding some light on the mechanisms responsib...

visioncareindia · visioncareindia

We are pleased to introduce the "C3R –Corneal Collagen Cross Linking with Riboflavin" treatment for keratoconus patients. C3R is a revolutionary treatment. Corneal Collagen Cross Linking with Riboflavin (C3R) is now available for treating keratoconus permanently at G.G.S.I.EY...

QuintriX · QuintriX

Implantable device for sustained release of cyclosporine may be future of immunosuppression BARCELONA — An implantable device for the sustained delivery of cyclosporine over 1 year may be a valuable method of preventing graft failure, allowing for greater tissue drug levels and reduced side ef...

BionicEyes · BionicEyes

The Iranian Blood Transfusion Organization has used human blood plasma to produce fibrin glue which can replace surgical stitches. The new glue can be used in various surgical procedures including cornea transplant which is an extremely sensitive operation, officials with the organization to...

JNewman · JNewman

Eyeworld Article Interesting quotes on some new research.

bluesfan · bluesfan

I wonder if this was already posted before over here, but this site includes voice and presentation transcripts from the "Refractive online congress". I came acorss it today and was simply stunned. Lots of information and opinions directly from the doctors themselves, you get to hear t...

Reloaded · Reloaded

Replacing cells of corneas....please click on the link below..... http://healthlink.mcw.edu/article/1031002392.html -- Edited by QuintriX at 01:12, 2005-10-18

Yarsky · Yarsky

We have already discussed this article somewhere in 2005 or 2006. It is some fundamental research on the corneal structure. In particular, it tells us what is the difference, on a ruther fundamental level, between a normal cornea and a KC cornea. It provoked some other researches in the same vein (cf...

bluesfan · bluesfan

I stumbled upon this article by sheer coincedence today. It doesn't sound very nice but apprarently the study quoted here seems to sugest there could be a connection between KC and mental health. I am wondering now, could this put us KC sufferers at the risk of being stigmatized? As if the problems of K...

Yarsky · Yarsky

Please put here your impressions on how the weather influences your vision. I understand that the quality of light impacts the pupil size and thus the vision. I understand the humidity of the air may influence the refraction of the air and thus the vision. I'd like to understand how otherwise o...

Hari · Hari

I came across this somewhat dated article regarding complications related to corneal graft: The "Urrez-Sawalij" syndrome confirms our assumptions that in the basis of the disease (Keratoconus) lie not only cellular dislocations in the cornea that lead to its thinning from the cen...

QuintriX · QuintriX

There was a presentation I watched with a Dr using traditional Chinese acupuncture medicine for Keratoconus. His son has Keratoconus and feels particularly devoted to helping him. He is trying to put together more research on acupuncture for KC and wants to make available a pressure point map of wh...

QuintriX · QuintriX

This sawb test could be possiblity added to aid diagnoses. I say possibly, as not even the gene test they are working on claims it will be able to predict keratoconus for anyone tested. Also tear composition changes from day to night, through food in take, medication, changes in hormone levels (ie p...

BionicEyes · BionicEyes

There is a new type of implantable contact lense technology on the horizon. With this the epithelium is removed and a lense is put in the cornea, then the epithelium grows back over. I was reading from the google cache comments from an old forum where someone had written to the developer of this t...

BionicEyes · BionicEyes

http://www.carleton.ca/catalyst/hms3.html -- Edited by QuintriX at 00:59, 2006-06-08

QuintriX · QuintriX

OK, what is a Hysteresis? and why has this measurment just been discovered and is needed? No googling for the answer! (and its likely not to be there) as if you was paying attention you guys should know of the top of your heads!

(OK very newbies may not know!

)

Yarsky · Yarsky

Hi, a little chat with a friend from the french forum set in motion some thoughts that now seem to be well glued up. He mentioned the inflamatory theory of the KC. One element of this theory being that inflamatory molecules trigger specific enzymes synthesis in keratocytes...

Hari · Hari

Its exactly 100 years since the first corneal transplant. Not only was it the first corneal but also the first of any form of human tissue transplant. As the article states very little has changed from the basic principles used all those years ago. And once again the old faithful 90% success rate is c...

zeno · zeno

I've been trying to find out about KC research institutions. It seems that there are very few (two or three at most?) , and none of them is very big. There are almost NO corporations donating to find a cure. There is NO public awareness, in fact many OPTOMETRISTS don't even know about the disease! There i...

Hari · Hari

This may have nothing to do with our fight againt KC but the innovation of this article interested me... It seems that scientists can now 'Grow' human tissue in a matter of minutes. Experiments are now being carried out making fresh collagen: 'The tissue was not only made much faster than that made i...

Markus · Markus

Hello! Just a quick note to a new study. Limited PRK feasible in keratoconus patients following UVA corneal cross-linking http://www.osnsupersite.com/view.asp?rID=18394 You have to sign in for reading it, but ist free and easy. Many greetings, MARKUS

Topic		Started By	Replies	Views	Last Post

	All keratoconus treatments (updated list) (Preview) I plan to create a database of keratoconus treatments, which includes clinical outcomes (refrections, HOA's, keratoconus progressions, etc), inclusion and exclusion criteria, complications & risks, etc. Of course, all of the information will include medical references. This is so ker...	DigiKera	3	127	Tue Jan 22 7:15 PM, 2019 by JimKC
	Limbus-derived Stem Cells to Treat Corneal Damage (Preview) Hi all, Just wondering if anyone out there has had any direct experience with (or any knowledge of) stem cell treatment for Kerotoconus/ damaged corneas? Stem cell treatment seems to be the quackery flavour of the mouth for healing everything from autism to baldness but this corneal treatment seem...	Hari	0	51	Thu Oct 5 10:46 PM, 2017 by Hari
	17 treatments of Keratoconus (under research, clinical trials, available treatments) (Preview) Under research: Continuous Wave Infrared Laser Laser tissue welding in corneal transplant Cornea reshaping eye-drops Under clinical trials: XtraFocus pinhole implant Corneal Allogenic Intrastromal Ring Segments (CAIRS) Corneal Tissue Addition for Keratoconus Hyperopia Intracorneal S...	DigiKera	3	98	Thu May 25 4:50 PM, 2017 by Wayne

	Taking matters into my own hands --- My recent KC diagnosis (Preview) Hello all, I am new to the site here which I luckily stumbled upon. I will try to be to the point and explain what I wish to convey in my disucssion here. - I have just been diagnosed a couple months ago having KC - For some years I've lived with inadequate vision and eye glasses have only enabled me to instead...	Alexander	4	498	Sun Oct 30 6:46 PM, 2016 by JimKC
	Interesting KC treatment research (Preview)	BionicEyes	1	47	Thu Oct 13 5:15 AM, 2016 by Wayne
	IV Sedation (Preview) Hello, I'm a new member here. I was just wondering if anyone here has undergone the cross-linking procedure while under the effects of IV sedation? My eyes are too sensitive for me to undergo the cross-linking with only the help of Ativan; I need IV sedation if I am ever going to fix my keratoconus. I hav...	Ryan LeClair	1	62	Mon Oct 14 4:29 PM, 2013 by Deb

	Iontophoresis Device for Corneal Cross-Linking (Preview) SOOFT italia S.p.A. Receives CE Mark Certification for Its 'Iontophoresis Device for Corneal Cross-Linking' Mar 25, 2013 (Close-Up Media via COMTEX) -- SOOFT italia S.p.A., a company of OOgroup, announce the worldwide launch of its "Device and method for Corneal delivery of Riboflavin by Ionto...	Wayne	1	67	Wed Mar 27 9:37 PM, 2013 by Remo
	New Keratoconus Treatment? ( 1 2 3 ) (Preview) Hello everybody, a senior ophthalmic surgeon Dr. Samir Quawasmi presented a new approach for the treatment of keratoconus (http://drsamirquawasmi.com/en/tv.html) some months ago. Have you heard of it? I don't know Arabian. Could someone transalte a summary of it into English, please? ...	magaretoonline	17	1702	Sat Nov 24 11:07 PM, 2012 by Penny
	Anyone know the history of the development of crosslinking? (Preview) Somewhere on the Internet I read about the scientific history of crosslinking. Maybe it had to do with animals. I know I read it somewhere, but cannot find it again. When people hear that the crosslinking procedure involves Vitamin B2 (riboflavin) and ultra-violet light, they ask how this was disc...	Emily_G	3	268	Thu Jun 14 12:50 PM, 2012 by Emily_G

	After cxl? (Preview) Hello I had both my eyes cross linked last year, I have seen no improvement in vision, my doc told me that my eyes are improving that they are becoming more flat, I was told before any procedures that I'm not suitable for laser as my cornea is too thin, I'm not happy with my results because my vision is still...	Darragh	4	349	Fri Jun 8 4:23 PM, 2012 by Emily_G
	KXL™ System has received the European Union’s CE Mark. (Preview) http://www.bioportfolio.com/news/article/271156/Avedro-s-Kxl-System-Receives-The-European-Ce-Mark-For-Corneal-Collagen.html Avedro, Inc., sponsor of two completed US FDA multi-center clinical trials for corneal cross-linking, today announced that its KXL™ System for perfo...	Dineshk	1	381	Tue Sep 27 7:26 PM, 2011 by Kreading
	New Keratoconus / Crosslinking Congresses in 2011 (Preview) Hi, mabye interesting for some of you. Hope research goes on.... http://www.cxlcongress.com/2011CXLprogram.pdf http://www.cxl-congress.org/ Andi	metallic2010	1	268	Sat Jun 18 12:13 AM, 2011 by Remo

	6th Corneal Collagen Crosslinking Conference Milan 2011 (Preview) Update on keratoconus treatments Introduction Keratoconus and post-LASIK ectasia treatment has become interesting to ophthalmologists at last. The recent 6 th Corneal Collagen Crosslinking meeting in Milan was the best attended ever with over300 surgeons present. Special inter...	Dr David Jory MBBS FRCOphth	1	391	Fri Apr 15 12:44 PM, 2011 by bawse
	Topography Results: Artsybashev Keratotomy Technique ( 1 2 ) (Preview) Stage II Keratoconus One Month Control Examination Pre-operation UCVA: OD = 20/200 OS = 20/60 Post-operation UCVA: OD = 20/40 OS = 20/22.5	drgoren	15	797	Fri Jan 21 6:08 AM, 2011 by drgoren
	Artifical cornea (Preview) http://sciencemode.com/2007/10/05/artificial-cornea-to-be-clinically-tested-in-early-2008-thousands-hope-for-success/-- Edited by Chris_NZ at 09:43, 2007-10-07	BionicEyes	2	344	Thu Aug 12 7:16 AM, 2010 by Sooner Man

	Anyone heard of CK Radiofrequency for Advanced Keratoconus ( 1 2 ) (Preview) Hello All, Just wondering if anyone has heard of CK Radiofrequency for Advanced Keratoconus? Stumbled upon an abstract to an interesting article and a video. Can anyone access this article without having to pay for it? Any thoughts on this technology? http://www.jcrsjournal.org/article...	ccormier77	8	533	Fri Jun 18 7:59 PM, 2010 by Zenke
	crosslinking after corneal graft (Preview) Hello everybody, Does anybody has any idea or experience of crosslinking after corneal grafting?	alihekmat	1	242	Wed May 26 2:52 AM, 2010 by Wayne
	ESCRS 14th Winter Meeting Budapest 2010 (Preview) The European Society of Cataract & Refractive Surgeons recently held their winter meeting in Budapest. During the first day of the conference there was a symposium on keratoconus. Topics discussed included genetics, diagnostics, cross-linking combined with excimer surgery, Intacs, and...	drgoren	2	278	Fri Feb 26 10:58 AM, 2010 by drgoren

	Progression prevention tx for cornea < 300 mu? (Preview) My bottom-line question is: are there any more promising treatments for advanced and progressing keratoconus of this degree -- less than 300 microns which apparently is a typical cutoff for CxL in the U.S. which, at least in this area, seems more liberal -- that are more likely to halt the disease pro...	SR	3	315	Tue Dec 23 10:20 PM, 2008 by SR
	A comprehesive nutritional protocol for keratoconus (Preview) A comprehesive nutritional protocol for keratoconus Optometric Management, Mar 2000 by Freedman, Joseph M Keratoconus slowly robs young people of their vision and creates a multitude of other problems. Fortunately, a flurry of research is now shedding some light on the mechanisms responsib...	fs	0	475	Sun Jun 29 6:23 AM, 2008 by fs
	C3R CORNEAL CROSS LINKING C3R CORNEAL CROSS LINKING WITH RIBOFLAVIN (Preview) We are pleased to introduce the "C3R –Corneal Collagen Cross Linking with Riboflavin" treatment for keratoconus patients. C3R is a revolutionary treatment. Corneal Collagen Cross Linking with Riboflavin (C3R) is now available for treating keratoconus permanently at G.G.S.I.EY...	visioncareindia	0	333	Tue Feb 26 4:06 AM, 2008 by visioncareindia

	Immunosuppression Implant (Preview) Implantable device for sustained release of cyclosporine may be future of immunosuppression BARCELONA — An implantable device for the sustained delivery of cyclosporine over 1 year may be a valuable method of preventing graft failure, allowing for greater tissue drug levels and reduced side ef...	QuintriX	0	232	Tue Feb 12 6:59 PM, 2008 by QuintriX
	Cornea Glue (Preview) The Iranian Blood Transfusion Organization has used human blood plasma to produce fibrin glue which can replace surgical stitches. The new glue can be used in various surgical procedures including cornea transplant which is an extremely sensitive operation, officials with the organization to...	BionicEyes	1	352	Fri Feb 1 2:37 PM, 2008 by Kane
	Good article in Eyeworld (Preview) Eyeworld Article Interesting quotes on some new research.	JNewman	0	243	Tue Jan 15 10:01 PM, 2008 by JNewman

	presentations from 2006 KC congrss - A MUST READ! (Preview) I wonder if this was already posted before over here, but this site includes voice and presentation transcripts from the "Refractive online congress". I came acorss it today and was simply stunned. Lots of information and opinions directly from the doctors themselves, you get to hear t...	bluesfan	1	288	Sun Oct 28 7:00 PM, 2007 by Yarsky
	Stem Cells for Cornea ( 1 2 ) (Preview) Replacing cells of corneas....please click on the link below..... http://healthlink.mcw.edu/article/1031002392.html -- Edited by QuintriX at 01:12, 2005-10-18	Reloaded	12	872	Sun Oct 7 9:52 AM, 2007 by BionicEyes
	Changes in Collagen Orientation and Distribution in Keratoconus Corneas (Preview) We have already discussed this article somewhere in 2005 or 2006. It is some fundamental research on the corneal structure. In particular, it tells us what is the difference, on a ruther fundamental level, between a normal cornea and a KC cornea. It provoked some other researches in the same vein (cf...	Yarsky	0	226	Sun Oct 7 12:56 AM, 2007 by Yarsky

	Keratoconus patients are more likely to have psychiatric disorders, study shows (Preview) I stumbled upon this article by sheer coincedence today. It doesn't sound very nice but apprarently the study quoted here seems to sugest there could be a connection between KC and mental health. I am wondering now, could this put us KC sufferers at the risk of being stigmatized? As if the problems of K...	bluesfan	3	338	Sun Sep 23 1:12 AM, 2007 by bluesfan
	KC and the weather (Preview) Please put here your impressions on how the weather influences your vision. I understand that the quality of light impacts the pupil size and thus the vision. I understand the humidity of the air may influence the refraction of the air and thus the vision. I'd like to understand how otherwise o...	Yarsky	4	336	Wed Sep 5 3:06 AM, 2007 by cloudd
	Urrez-Sawalij syndrome ( 1 2 ) (Preview) I came across this somewhat dated article regarding complications related to corneal graft: The "Urrez-Sawalij" syndrome confirms our assumptions that in the basis of the disease (Keratoconus) lie not only cellular dislocations in the cornea that lead to its thinning from the cen...	Hari	15	594	Sun Jul 8 1:53 AM, 2007 by QuintriX

	Acupuncture for KC (Preview) There was a presentation I watched with a Dr using traditional Chinese acupuncture medicine for Keratoconus. His son has Keratoconus and feels particularly devoted to helping him. He is trying to put together more research on acupuncture for KC and wants to make available a pressure point map of wh...	QuintriX	0	298	Sat Apr 14 5:41 AM, 2007 by QuintriX
	Ocular test for pathologies (Preview) This sawb test could be possiblity added to aid diagnoses. I say possibly, as not even the gene test they are working on claims it will be able to predict keratoconus for anyone tested. Also tear composition changes from day to night, through food in take, medication, changes in hormone levels (ie p...	QuintriX	0	234	Sun Jan 28 2:58 PM, 2007 by QuintriX
	Corneal onlays (Preview) There is a new type of implantable contact lense technology on the horizon. With this the epithelium is removed and a lense is put in the cornea, then the epithelium grows back over. I was reading from the google cache comments from an old forum where someone had written to the developer of this t...	BionicEyes	4	323	Tue Nov 21 10:22 AM, 2006 by BionicEyes

	Cornea implant and regeneration (Preview) http://www.carleton.ca/catalyst/hms3.html -- Edited by QuintriX at 00:59, 2006-06-08	BionicEyes	2	286	Wed Nov 1 8:26 PM, 2006 by QuintriX
	Hysteresis-A new unit of measurment (Preview) OK, what is a Hysteresis? and why has this measurment just been discovered and is needed? No googling for the answer! (and its likely not to be there) as if you was paying attention you guys should know of the top of your heads! (OK very newbies may not know!)	QuintriX	5	281	Tue Oct 24 6:18 AM, 2006 by QuintriX
	Some thoughts ( 1 2 ) (Preview) Hi, a little chat with a friend from the french forum set in motion some thoughts that now seem to be well glued up. He mentioned the inflamatory theory of the KC. One element of this theory being that inflamatory molecules trigger specific enzymes synthesis in keratocytes...	Yarsky	8	520	Tue Oct 10 11:11 AM, 2006 by Yarsky

	100 years of corneal transplants (Preview) Its exactly 100 years since the first corneal transplant. Not only was it the first corneal but also the first of any form of human tissue transplant. As the article states very little has changed from the basic principles used all those years ago. And once again the old faithful 90% success rate is c...	Hari	5	312	Thu Oct 5 3:02 AM, 2006 by zeno
	Where is the funding for KC research? (Preview) I've been trying to find out about KC research institutions. It seems that there are very few (two or three at most?) , and none of them is very big. There are almost NO corporations donating to find a cure. There is NO public awareness, in fact many OPTOMETRISTS don't even know about the disease! There i...	zeno	1	299	Wed Oct 4 11:00 PM, 2006 by QuintriX
	Instant Collagen (Preview) This may have nothing to do with our fight againt KC but the innovation of this article interested me... It seems that scientists can now 'Grow' human tissue in a matter of minutes. Experiments are now being carried out making fresh collagen: 'The tissue was not only made much faster than that made i...	Hari	3	356	Wed Oct 4 6:16 AM, 2006 by zeno

	PRK after Crosslinking - new London study (Preview) Hello! Just a quick note to a new study. Limited PRK feasible in keratoconus patients following UVA corneal cross-linking http://www.osnsupersite.com/view.asp?rID=18394 You have to sign in for reading it, but ist free and easy. Many greetings, MARKUS	Markus	1	355	Fri Sep 15 12:46 AM, 2006 by QuintriX
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