Family Support, Help and Advice - www.KCFreedom.org

james858 · james858

Hi all, I found this forum back a few weeks ago and ever since I have been reading other people's suggestions and advice and their stories and it has been somewhat helpful :) I was diagnosed with KC about three years ago and did a CXL a few weeks after diagnoses cause I truly was afraid of losing my vision....

Fayem · Fayem

Hey, Is there any relationship between cataract treatment and blood pressure? My mother who is 87-year-old is showing the symptoms of cataract. She has difficulties with her vision, especially at night and she is also complaining about blurred vision and double vision. So we are in a thought of ge...

Luani43 · Luani43

Hi all, I’m new here and I just want to share my concerns with you all. For a couple of months, My mom has been experiencing severe pain and vision changes in her eyes. She is sensitive to light, too. Her doctor in see by intravision, Oakville advised her to practice some eye exercise like zooming, blinki...

dailychaos · dailychaos

Hello,it s not the first time I post here,every time I posted ,people responded,and I am thankful to them for that.I got another problem and again it is job related.My family and everybody else is pressuring me to take a banking job even though I am not sure I can handle it with my keratoconus problem.I...

door60 · door60

We are just at the beginning of this journey, and I am trying to get information from others. Is there another board that you may know of like this one where I can pose some questions so that I can gather lots of information for my son?

Tankhill01 · Tankhill01

Vitamins D,B,K and Magnesian can help regress Keratoconus. And also eating a green diet helps alot too. Stop watching tv and phones. Give your eyes. I get in tune with nature and think postive all the time.

kcparent1999 · kcparent1999

Hello Being a parent of a KC sufferer I wanted to see if there was anyone else here whose child has KC? Also, is there a list of lenses a child could try to cope with KC? KCP - Jane

Emily_G · Emily_G

I am in procedure room. My young adult son is in chair reclining as his eye hydrates. This takes 20 minutes. Emily_G

KangaA · KangaA

As a mother of a 14 year old boy with KC I was wondering if anyone could tell me how it can impact concentration and school performance. My son was only recently diagnosed, it is very advanced in his left eye but less so in his right so he's been coping well relying on his one good eye. In the last few months I'...

Emily_G · Emily_G

Hello all! Here is the update about my son's adventures with contact lenses after one-eye epi-on crosslinking. I've been away from computers for several weeks now. Also, I haven't see my young adult son, Dan, during the last few weeks. All I can tell you now is the good and the bad of this next step...

Joanna · Joanna

Hi everyone, I was just wondering if anyone has family connections to KC. When our 14 year old son, Alex was diagnosed (November 2008) with KC, we were told that this can be a hereditary/genetic disease. When we started looking into this further, we could not find anyone in both families that have ha...

Emily_G · Emily_G

Tomorrow my young adult son gets epi-on crosslinking in one eye. I've done a lot of research, so has he. We all feel this is the right decision. Nevertheless, I am extremely nervous. Any procedure would make me a bit apprehensive. ( Hey, I'm the worrying type). Here in the USA, a clinical trial, w...

Joanna · Joanna

Our 14 year old son is recovering from his first C3R procedure on his worst eye. He had it done Dec 11/08. Going through this process was not to bad and almost pain free. Now he is getting frustrated because of the haze that he has in that eye plus the damage that the disease has done. His next surgery is sche...

Joanna · Joanna

Me and our son Alex, were interviewed by our local paper, The Brampton Guardian about KC. If you want to read it go to the following link : http://www.bramptonguardian.com/community/health/article/931285--family-puts-spotlight-on-rare-eye-disease

flynea · flynea

Hello all, First of all I want to say this site is great, so much information, and I think it is so important for everyone to be educated and involved! My fiance was diagnosed with Keratoconus when he was 14, and at the time he was uninsured (he grew up with a single mom and she did everything! Except insura...

ccormier77 · ccormier77

My son who is 15 was diagnosed with keratoconus both eyes (Mar 2010), the right one being worse than the left. He had crosslinking on both eyes in an effort to halt the progression of this "silient" disease. Left eye is great and went from 20/50 to 20/25 uncorrected. However, the right e...

mariya · mariya

hello everybody, my name is mariya and my boyfriend is a kc sufferer.he has got his keratoconus since he was 19 years old,that means 10 years and more all together.recently he had crosslinking done on both eyes.right eye (better one)was done on 18/06/07 and left one was done on 25/06/07.there is mor...

Thu Jun 30 11:52 PM, 2005 by

Some usful to know "Frequently asked Question about Children's Vision"....check out the link for kc as well on the site....the site is named well...it's called..."Eye Freedom"

Please Click Here -- Edited by QuintriX at 23:54, 2...

Topic		Started By	Replies	Views	Last Post

	I really need some help and support ( 1 2 3 ) (Preview) Hi all, I found this forum back a few weeks ago and ever since I have been reading other people's suggestions and advice and their stories and it has been somewhat helpful :) I was diagnosed with KC about three years ago and did a CXL a few weeks after diagnoses cause I truly was afraid of losing my vision....	james858	18	217	Wed Feb 28 10:52 AM, 2018 by JimKC
	Cataract treatment and bp (Preview) Hey, Is there any relationship between cataract treatment and blood pressure? My mother who is 87-year-old is showing the symptoms of cataract. She has difficulties with her vision, especially at night and she is also complaining about blurred vision and double vision. So we are in a thought of ge...	Fayem	3	35	Mon Sep 11 6:59 AM, 2017 by Vilaz
	Lasik surgery at 62 (Preview) Hi all, I’m new here and I just want to share my concerns with you all. For a couple of months, My mom has been experiencing severe pain and vision changes in her eyes. She is sensitive to light, too. Her doctor in see by intravision, Oakville advised her to practice some eye exercise like zooming, blinki...	Luani43	3	38	Mon Jul 11 12:21 PM, 2016 by Angelieeena43

	Banking job and Keratoconus (Preview) Hello,it s not the first time I post here,every time I posted ,people responded,and I am thankful to them for that.I got another problem and again it is job related.My family and everybody else is pressuring me to take a banking job even though I am not sure I can handle it with my keratoconus problem.I...	dailychaos	7	119	Wed May 20 8:14 PM, 2015 by JimKC
	Are there other Message Boards out there for Kerataconus Support ? (Preview) We are just at the beginning of this journey, and I am trying to get information from others. Is there another board that you may know of like this one where I can pose some questions so that I can gather lots of information for my son?	door60	1	74	Sat Feb 28 1:33 AM, 2015 by Megan
	keratoconus should heal with a healthy diet (Preview) Vitamins D,B,K and Magnesian can help regress Keratoconus. And also eating a green diet helps alot too. Stop watching tv and phones. Give your eyes. I get in tune with nature and think postive all the time.	Tankhill01	0	22	Fri May 23 1:13 AM, 2014 by Tankhill01

	KC Parent ( 1 2 3 4 5 ) (Preview) Hello Being a parent of a KC sufferer I wanted to see if there was anyone else here whose child has KC? Also, is there a list of lenses a child could try to cope with KC? KCP - Jane	kcparent1999	36	823	Thu Dec 19 11:45 AM, 2013 by Megan
	Crosslinking, epi-on, mom's blog ( 1 2 3 4 5 ) (Preview) I am in procedure room. My young adult son is in chair reclining as his eye hydrates. This takes 20 minutes. Emily_G	Emily_G	36	480	Fri Mar 15 5:55 AM, 2013 by Deb
	Concentrating at school (Preview) As a mother of a 14 year old boy with KC I was wondering if anyone could tell me how it can impact concentration and school performance. My son was only recently diagnosed, it is very advanced in his left eye but less so in his right so he's been coping well relying on his one good eye. In the last few months I'...	KangaA	2	55	Wed Sep 26 11:04 PM, 2012 by Bobby

	Contact Lenses after epi-on crosslinking: Mom's blog continued (Preview) Hello all! Here is the update about my son's adventures with contact lenses after one-eye epi-on crosslinking. I've been away from computers for several weeks now. Also, I haven't see my young adult son, Dan, during the last few weeks. All I can tell you now is the good and the bad of this next step...	Emily_G	2	35	Sat Aug 11 11:05 PM, 2012 by Emily_G
	Does anyone else in your family have KC? ( 1 2 ) (Preview) Hi everyone, I was just wondering if anyone has family connections to KC. When our 14 year old son, Alex was diagnosed (November 2008) with KC, we were told that this can be a hereditary/genetic disease. When we started looking into this further, we could not find anyone in both families that have ha...	Joanna	10	158	Thu Aug 9 3:52 AM, 2012 by gkygrl
	Epi-on Crosslinking tomorrow 4 my son USA - I'm nervous (Preview) Tomorrow my young adult son gets epi-on crosslinking in one eye. I've done a lot of research, so has he. We all feel this is the right decision. Nevertheless, I am extremely nervous. Any procedure would make me a bit apprehensive. ( Hey, I'm the worrying type). Here in the USA, a clinical trial, w...	Emily_G	2	44	Thu Jun 7 5:31 AM, 2012 by Emily_G

	14 year old son with KC ( 1 2 3 4 ) (Preview) Our 14 year old son is recovering from his first C3R procedure on his worst eye. He had it done Dec 11/08. Going through this process was not to bad and almost pain free. Now he is getting frustrated because of the haze that he has in that eye plus the damage that the disease has done. His next surgery is sche...	Joanna	27	410	Tue Feb 28 2:24 AM, 2012 by Deb
	Kertoconus article (Preview) Me and our son Alex, were interviewed by our local paper, The Brampton Guardian about KC. If you want to read it go to the following link : http://www.bramptonguardian.com/community/health/article/931285--family-puts-spotlight-on-rare-eye-disease	Joanna	2	46	Fri Jan 21 3:54 AM, 2011 by Kane
	My fiance and his eyes (Preview) Hello all, First of all I want to say this site is great, so much information, and I think it is so important for everyone to be educated and involved! My fiance was diagnosed with Keratoconus when he was 14, and at the time he was uninsured (he grew up with a single mom and she did everything! Except insura...	flynea	5	134	Tue Nov 30 10:30 PM, 2010 by Melissa

	15 y.o. son - cxl done - BSCVA 20/125 - now what? ( 1 2 ) (Preview) My son who is 15 was diagnosed with keratoconus both eyes (Mar 2010), the right one being worse than the left. He had crosslinking on both eyes in an effort to halt the progression of this "silient" disease. Left eye is great and went from 20/50 to 20/25 uncorrected. However, the right e...	ccormier77	11	165	Mon Jul 5 6:42 AM, 2010 by alihekmat
	KC partner ( 1 2 ) (Preview) hello everybody, my name is mariya and my boyfriend is a kc sufferer.he has got his keratoconus since he was 19 years old,that means 10 years and more all together.recently he had crosslinking done on both eyes.right eye (better one)was done on 18/06/07 and left one was done on 25/06/07.there is mor...	mariya	12	242	Wed Sep 12 7:21 AM, 2007 by Kane
	Children's Vision Information (Preview) Some usful to know "Frequently asked Question about Children's Vision"....check out the link for kc as well on the site....the site is named well...it's called..."Eye Freedom" Please Click Here -- Edited by QuintriX at 23:54, 2...		1	95	Thu Jun 30 11:52 PM, 2005 by
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