Hi all, I found this forum back a few weeks ago and ever since I have been reading other people's suggestions and advice and their stories and it has been somewhat helpful :) I was diagnosed with KC about three years ago and did a CXL a few weeks after diagnoses cause I truly was afraid of losing my vision....
Hey, Is there any relationship between cataract treatment and blood pressure? My mother who is 87-year-old is showing the symptoms of cataract. She has difficulties with her vision, especially at night and she is also complaining about blurred vision and double vision. So we are in a thought of ge...
Hi all, I’m new here and I just want to share my concerns with you all. For a couple of months, My mom has been experiencing severe pain and vision changes in her eyes. She is sensitive to light, too. Her doctor in see by intravision, Oakville advised her to practice some eye exercise like zooming, blinki...
Hello,it s not the first time I post here,every time I posted ,people responded,and I am thankful to them for that.I got another problem and again it is job related.My family and everybody else is pressuring me to take a banking job even though I am not sure I can handle it with my keratoconus problem.I...
We are just at the beginning of this journey, and I am trying to get information from others. Is there another board that you may know of like this one where I can pose some questions so that I can gather lots of information for my son?
Vitamins D,B,K and Magnesian can help regress Keratoconus. And also eating a green diet helps alot too. Stop watching tv and phones. Give your eyes. I get in tune with nature and think postive all the time.
Hello
Being a parent of a KC sufferer I wanted to see if there was anyone else here whose child has KC?
Also, is there a list of lenses a child could try to cope with KC?
KCP - Jane
As a mother of a 14 year old boy with KC I was wondering if anyone could tell me how it can impact concentration and school performance. My son was only recently diagnosed, it is very advanced in his left eye but less so in his right so he's been coping well relying on his one good eye. In the last few months I'...
Hello all! Here is the update about my son's adventures with contact lenses after one-eye epi-on crosslinking. I've been away from computers for several weeks now. Also, I haven't see my young adult son, Dan, during the last few weeks. All I can tell you now is the good and the bad of this next step...
Hi everyone,
I was just wondering if anyone has family connections to KC. When our 14 year old son, Alex was diagnosed (November 2008) with KC, we were told that this can be a hereditary/genetic disease. When we started looking into this further, we could not find anyone in both families that have ha...
Tomorrow my young adult son gets epi-on crosslinking in one eye. I've done a lot of research, so has he. We all feel this is the right decision. Nevertheless, I am extremely nervous. Any procedure would make me a bit apprehensive. ( Hey, I'm the worrying type). Here in the USA, a clinical trial, w...
Our 14 year old son is recovering from his first C3R procedure on his worst eye. He had it done Dec 11/08. Going through this process was not to bad and almost pain free. Now he is getting frustrated because of the haze that he has in that eye plus the damage that the disease has done. His next surgery is sche...
Me and our son Alex, were interviewed by our local paper, The Brampton Guardian about KC. If you want to read it go to the following link : http://www.bramptonguardian.com/community/health/article/931285--family-puts-spotlight-on-rare-eye-disease
Hello all, First of all I want to say this site is great, so much information, and I think it is so important for everyone to be educated and involved! My fiance was diagnosed with Keratoconus when he was 14, and at the time he was uninsured (he grew up with a single mom and she did everything! Except insura...
My son who is 15 was diagnosed with keratoconus both eyes (Mar 2010), the right one being worse than the left. He had crosslinking on both eyes in an effort to halt the progression of this "silient" disease. Left eye is great and went from 20/50 to 20/25 uncorrected. However, the right e...
hello everybody, my name is mariya and my boyfriend is a kc sufferer.he has got his keratoconus since he was 19 years old,that means 10 years and more all together.recently he had crosslinking done on both eyes.right eye (better one)was done on 18/06/07 and left one was done on 25/06/07.there is mor...
Some usful to know "Frequently asked Question about Children's Vision"....check out the link for kc as well on the site....the site is named well...it's called..."Eye Freedom"
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