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STICKY:
Cross-Linking: Frequently Asked Question & Answers
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Corneal collagen (X Linking) Cross-Linking (C3R or UVX) FAQs Produced Exclusively for KC Global Freedom What is cross-linking?Cross-linking is a medical procedure that combines the use of ultra-violet light and riboflavin eye drops. What is the purpose of cross-linking? The last two of years...
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QuintriX
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Is there anyone here who underwent keratoconus treatment?
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Hi, Happy New Year To all in advance.I live in Ontario with my family. It's been a few weeks since I have been experiencing blurred vision. I haven't taken it seriously at the beginning. But lately, my eyes have slight swelling. So the last day I consulted an ophthalmologist. He suggested undergoing s...
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Olvery97
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VitaminC before CXL
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Could you comment such recommendation, which can be found in many clinics performing cross-linking: "do not take Vitamin C supplements within 1 week of the CCL procedure". Has anybody heard this guidance before the procedure? I'm little confused, because Vit C is considered as essen...
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lukasf
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advice needed for intacs or ferrara ring
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Can some one guide me with treatment is better for advanced keratoconus (intacs or ferrara)
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irfan0011
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Now I need cataract surgery! But first considering CXL and Intacs.
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Just 33 yrs old but I have a cataract that now requires surgery. I was diagnosed with KC about 6 years ago and given RGP lenses. I've had a hard time wearing them but managed to get used to wearing it only in my left eye, which has worked out fine up to now. Now vision is getting worse in my right eye due to a cata...
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SebGood
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Cause of Keratoconus
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Hello everyone,I am 28,I was diagnosed with KC almost 2 years ago on my right eye and a month after I had Cross linking surgery. Ok so I have a question.Could KC be caused by exposure to welding flame? I was exposed to flame when I was working in a factory 6 years ago,since no one from management cared much a...
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dailychaos
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Advice Needed for C3R or cross-linkage treatment
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Hi, I am 25 this year and I have had keratoconus for last 8 years now. I have been using RGP lens since then and changed them 2 years ago. I went for 2nd opinion in India and I was told i should go for c3r. But when i consulted my regular doctor in Singapore, he said my cornea is thinner than normal for c3r and he...
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rrshah
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Should I go for C3R
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Hi, I am suffering from Keratoconous for past 5 years. I am 23 years old now. I have got mixed answers on C3R + INTACS. One doctor told it would be benefitial for me and other doctor said it has many side effects and it is like playing with your eyes. I am confused whether to go for it or not. I am working in a so...
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sauttam
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Your opions, Haze problems, CXL with rather minor KC?
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Hi, i have been reading here for some hours, i am scheduled for an epi off x-link (the first in the region, southern part of Sweden) in some weeks hopefully. I have KC on both Eyes, the worst in late stage 2 close or slightly below 400um. The doctor said not to worry a solution exist to marginally thicken th...
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Zenke
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Surgeons should not emphasize modifying the technique but rather efficiently using it.
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Corneal Collagen Crosslinking: Potential Pitfalls When Modifying the Technique Surgeons should not emphasize modifying the technique but rather efficiently using it. By Farhad Hafezi, MD, PhD The most important outcome of a corneal collagen crosslinking treatment with riboflavin and ultra...
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Remo
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C3-R do it yourself???
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I might have posted in the wrong forum but here it is again.. I've been suffering from Kerataconus, Very mild. I am able to get buy with soft lenses and glasses. I've been doing a ton of research about the C3-R procedure and it seems so stupid I can do it myself. I've heard of some people doing this with su...
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sungminz
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crosslinking after two years of intacs
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Hello: So I've finally decided to join the club and have crosslinking done (w/Dr. Mark Swanson in Mexico) in January. A question to all of you who had CCL after Intacs with a signficant period of time between the two. I had Intacs implanted in both eyes several years ago. I've lost some of the flattening...
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paixbouche
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Advise needed.
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I've attached scans which I've taken for Topopgraphy, Pachymetry, Custom Vue. I believe I surffer from PMD and might have caught it in its early stages.
On 06-14-07 I had a .25 Intac placed at 150d angel in my right eye, and 01-11-08 is my last follow up scan. According to the scan It appears that my cor...
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tremedy2c
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Need some advice before x-linking.......
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Guys i will be going for the x-linking the day after tommorow.....Well my pachymetry was done and i have got my right cornea thinnest at 434 microns and 436 microns in the left......The machine my docs will be using is some where related to 'theo seiler'...[as told by my doctor]....the pachmetry read...
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STANzboy
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Considering getting it done!
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I`ve just stumbled across this forum and pleased to be able to read other peoples experiences with KC and cross linking. I have just been informed of this procedure at my recent visit to the eye infirmary. If anyone could answer any of these questions - it would be most helpful! 1. I plan to get both eyes d...
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darkus
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EPI ON OR OFF... CONTINUED
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Hello All, It has been some months for me since I have been on this board. I had PTK surface ablation surgery performed on one eye in March of 2007, in Syracuse New York. I have bilateral Keratoconus.The results seem to be very good. I had this done to improve sight and hopefully halt the progression, h...
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simon123
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X- Linking and scarring
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I am due for a check up with my opticien on 20th November..I therefore am doing some research to have one or two questions prepared
I am thinking about trying to save up for crosslinking after christmas [considering i am unemployed that is not easy..i will have to start seriously job hunting..just t...
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Geraldine
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How to Contact Dr. Markus Kohlaas?
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Can someone please post the email or phone to get ahold of Dr. Markus. I have searched the web high and low and I can't get a hold of him. Thank you
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simon123
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Going for it! Helen's story
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thanks to brill info on this site and replies have decided to take the plunge. Am going to LCRs tomorrow for consultation and possibly treat the first eye on Friday, followed by the second eye in a weeks time . At the moment have 6/12 vision in my better eye but only 6/48 in my worse one. Can't wear contacts...
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Helen
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EPI ON OR OFF?
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Hello Everyone, I am trying to decide weather to do the C3r in Germany or Beverly Hills. I would love to do it in Beverly Hills because I LIVE THERE. I already flew to ITaly and all across north america for my PTK surgery and I really can't afford to be flying out again and again. I received a big email tod...
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simon123
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Stop wearing lens before?
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Hello,
I have a single doubt, did you have to do something special before the crosslinking?
specially I am thinking about not wearing your GP for some time, I am not sure if this is necessary in this operation.
your help is much appreciate
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Joseph
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FINALLY GOING!!
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Hi Everybody
I have finally got everything sorted out!!
I have an appointment with Dresden on 23rd for Xlinking
I have my visa - Thanks to my german friend alexander and her mother
I have leave from work - (Unpaid :( so its goin t hurt)
I will reach frankfurt on the 20th and will then ta...
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Heath
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Lenses or Glasses
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Hi all,
I have read a lot of the posts on x-linking, thanks for the good info you have gathered hear.
2 weeks from now I’m going to Dresden to be x-linked in my right eye.
I have read the post OP posts and found a lot of info, but as you all know each situation is unique in KC...
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Rani
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Need to Xlink - Heath
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Hi everybody
I am in the process of getting an appointment setup at dortmund to get Xlinking done.I am a student at the University of Mississippi in USA and am having extreme troubles to cope up with this disease. I use soft lenses which correct my vision to a workable situation.
I hav...
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Heath
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First Days After X-linking
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Can someone tell me what effects should I have the first days after the procedure?
What should/shouldn't be done?
What is considered normal?
Any other info will be welcome.
I’m doing the procedure in Dresden in middle of November, and I would like to here from people who pa...
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Rani
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Before X-Linking – Jan’s story
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I once read a book by my favorite Algerian-French writer Albert Camus who mentioned something about how to deal with any kind of permanent disease. He himself suffered from tuberculoses and had to change his life style because of it. For instance, he gave up playing his favorite sport football.
I d...
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Jan84
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X-linking and Intacs, Going to do it
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Tomorrow I am going to Sydney, Australia where I am having an Intac placed in one of my eyes on Friday. Then in three months I will have that eye x-linked and possibily then have an Intac put in the other eye, then a month or so later have that eye x-linked.
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BionicEyes
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Going to crosslinking 2
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Hi guys!
Next Tuesday, November 8 I have crosslinking scheduled for the left eye, the best one.
Again I've got 2 weeks off to do it. I'll report on it in the middle of November.
The right one is doing fine, it's now 3 months since the procedure. I do not have any acurate measurements of vis acuity o...
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Yarsky
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new to x linking cross linking research
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mmm well i think x linking is a particular version of crosslinking done in europe...but what is the difference...what are the odds of it making kc regress..My bad eye can see 6/9 or better with piggybacks but needs -9 hard contact, no letters uncorrected and probably with glasses(when I was -7...
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Geraldine
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Crosslinking again... contemplating about it
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I was wondering why we haven't read a post from someone actually experienced crosslinking. Surely there are enough people that has this procedure performed. I just hope that they have no more problems and hence no motivation to participate in forums... if that is so then we have additional pro for th...
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Valeri
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Going to X-Link
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Now, boys and girls, I contacted the German scientists from Dresden and reserved a day to do the procedure. It is the 31th of March 10.00AM. I hope I will not do a mistake but, anyway I know that I will do it now or after serveral months ... so it is better now (why letting this beast prog...
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Valeri
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