All of us Vs Keratoconus

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TOPIC: United we Stand


Veteran Member

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Posts: 47
Date: Fri Jan 25 5:25 AM, 2008
RE: United we Stand
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I check the board regularly but I have not had another topography yet since 1 month after the surgery. I am leaving the country om Jan 28th will be back in 1 month. I have been super busy with paper work following the surgery. I will post my topographies after I get another set done. I have also had dry eyes for the past week. because I went snowboarding and the cold dry air made then really dry and red they are almost back to normal. So a my eyes are really sensitive to cold dry are after this surgery. but that was only noticeable at -4 Celcius and below.

I will post results when I get them.

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Member

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Posts: 3
Date: Fri Jan 25 5:26 PM, 2008
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Dear Cloudd,
I have sent you a pm message. Could you please reply before you go out of town and shoot an e-mail back? I'd really appreciate it.

I am also considering Crossliking and limited topography guided PRK done in Greece.

I just have too many questions

Thanks a lot

Eugene

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Senior Member

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Posts: 124
Date: Thu Feb 14 2:47 PM, 2008
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Hello people,

I have found through out the internet a very informative webpage about crosslinking and combined treatments.Visit if you like:




Collagen crosslinking and combination treatments-Success stories


All the best,

-- Edited by Zeus at 14:49, 2008-02-14

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Senior Member

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Posts: 124
Date: Tue Feb 19 4:16 PM, 2008
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Hello,

I just read a new publication of Doctor Theo Seiler,our little God-saver i might say who talks about the benefits of crosslinking and how UCVA and BSCVA are improving through the six month period after crosslinking.Also,he talks about collagenases,i think these are this stupid enzymes that keratoconus produce so our cornea is becoming thinner and these enzymes dont do anything if the cornea has been crosslinked because of the rigidity and the general strengthening with new crosslinks.

So,if you like visit and read,it is a small article.I wish the reporter could made him talk more.In my opinion,we as Kcers should meet Dr Seiler in order to show him how he has change our lives and way of thinking by providing us a treatment therapy that is saving our precious corneas.Thank God for this man and his family.

Barcelona,Theo Seiler


Best Wishes,

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Senior Member

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Posts: 124
Date: Sat Mar 29 2:49 AM, 2008
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Hello to you all,


I hope everybody who has degenerative corneal diseases has already perform the lifesavour collagen crosslinking or else CXL.

I just wanted to get in touch with CLOUDD.

So,Cloudd if you like you can inform us about your current situation.Afterall,you are the only one in here that had the same treatment.I noticed you are away a little from the forum.So,join up again and talk a bit.

I hope you see my message.


Best Wishes,


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Senior Member

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Posts: 124
Date: Wed Apr 2 9:11 PM, 2008
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Hello,


Just an informative presentation of my doctor Anastasios John Kanellopoulos which shows the effectiveness of collagen crosslinking combined together with limited topography guided PRK.In the study i noticed there are treated people with post lasik ectasia with very engouraging results meaning 20/35,20/30 vision afterwards with or without unaided vision.As i said it before this treatment depends on the thickness of the cornea and if afterwards you will function with or without glasses.

I am also amazed about one patient that was a PK candidate meaning to go for a transplant and after the treatment the patient achieved 20/30 vision with glasses or a soft contact lense.

So,i think we must be very cautious when some doctors claim that transplants is the only way to the vision rehabilitation.

We have 2008 and we must act with technology and medicine together as one and then wonderful things-miracles are happening.

In my opinion.keratoconus and other corneal diseases will become a less problem to the future patients.I know its difficult for some of us to believe but thats the way it is due to technology improvement in hands of surgeons-doctors.Also,i think and from my experience Topo-PRK and Crosslinking together is the best possible and safe solution to achieve normal vision nowadays.

I am sure though that with the years new amazing treatments will emerge and very positive that all of them will have crosslinking as a safety net and a base for the combined treatments.

The link is:





And also,CLOUDD my friend come back to the forum and speak.You may solve your problem with the treament you had for good but people need to hear and learn from your experience also.The only way for receiving in life and feel happy is to GIVE.Whatever that is.So,dont go from the forum like that.

Best Wishes,Crosslinking and Topography-guided PRK with TCAT Allegretto Wavelight 400Hz

-- Edited by Zeus at 21:17, 2008-04-02

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Phase Two

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Posts: 479
Date: Thu Apr 3 3:21 AM, 2008
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The years of experience counts for more than anything, where now the treatment can be done by Dr. Kanelopoulos where its nothing to worry about more than normal refractive surgery is for normal people wanting corrective surgery, its like a normal cornea going for laser treatment ONLY WITH Dr Kanelopoulos, only due to the experiance he has had doing this since 2002.

He will only treat each cornea as safely as possible, because the treatment is customized, personalized to your own cornea, to get you back vision as optimal as possible, depending on what your stage is in Keratoconus.

Mild cases can be helped, right through to advanced KC (vision got back is dependant to how advanced your kc was to start with). The secret is going for follow ups afterwards with any treatment, being strict about it, getting tests done, monitoring-which all KC patients should do anyway every 6 months or every year as routine.


-- Edited by QuintriX at 03:25, 2008-04-03

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Veteran Member

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Posts: 42
Date: Sat Apr 17 9:14 PM, 2010
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Zeus,,,,
how are you doing my friend... No need to apologize for being either emotional or angered by the approach or the lack there of when it comes to other doctors. I would like to think that most are true professionals at heart but, Im afraid that some of us has 'herded' us as if we were cattle by ushering us in and out for the purpose of collecting a paycheck... It's so unfortunate.... I traveled through mental torture for 12 years just because he thought that the other procedures were too invasive. He made RGPs the only option as it was the most conservative approach in my situation.As much as I have appreciated this approach, it has also left a very bitter taste in my mouth... So much could have been done years before.... and so much could have been saved.
I'm extremely happy to hear about your case... You have fought and won your vision back!! Bravo my friend. In my blog, i had written, 'In some cases unfortunately, it will all come down to you being there for yourself" Nobody cares for you more than yourself! You would have thought that your previous doctor would have taken that charge.... but with you, you decided to research and hence here you are now.....

Im just approaching my 4 th week since Topo guided Prk. Things are still blurry but in seeing your story, you have not only inspired hope for me, but Im sure you 've inspired many..
Thanks again and well done

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