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Post Info TOPIC: My Crosslinking & PRK experience


Veteran Member

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Posts: 47
Date: Thu Nov 1 1:07 PM, 2007
My Crosslinking & PRK experience
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I would personally like to thank Zeus for posting all of the stuff he has regarding his surgery(crosslinking & PRK). I am very surprised at your last respone to me after the other thread, but this has made me stand on your side regarding crosslinking and PRK as one surgery.

I would like to add things are COMPLETELY different in your country of Greece compared to Canada and I feel the USA too in specific regards to eye care, knowledge and trust. The cost of the sergury was a lot but I do not get headaches anymore and that was noticed immediately after the pain from surgery was gone. THe surgery fixed and got rid of the rings I was seeing on all lights.


DAY 7 of recovery

This is today an my epithelium seems to be healing very well. I am seeing ghosting but it is in different directions from before mostly right and left. Before surgery the smearing duplicates were in the direction of the KC cone on the orbscans. The LEft and right ghosting should be because of the ASTIGMATSM and the imperfections in the epithelium as it heals this is a side effect of PRK(google it). I can see far without glasses BUT I can not read anything that well because of the ghosting which is a temporary thing with PRK. If the ghosting was gone I would be seeing 20/20 I think. So the next few days hopefully but maybe weeks or months this will be fixed. PRK can take up to 6 months to fully see the result and get rid of the ghosting. Even though many doctors tell your 10 days - 1 month. so not I can just wait WITHOUT HEADACHES :D

I many decide to to a complete storey after I heal more regarding the whole surgery

Thanks again Zeus you were the only one that has ever mentioned the doctor in greece to me, After googling Dr. Kanellopoulos' name it was obvious he is ahead of every other doctor in regards to crosslinking and PRK. I had originally thought this was the perfect fix over ayear ago but could not find anyone that had done it before. You are a hero in my eyes. I will be spreading what this surgery does for KC in Canada to others in the coming days. It NEEDS to be explained and accepted in the Canadian Health Care System. I am sure with how slow everything is in canada because of politics and unions that is will take a while before this change probably years but at least I was able to find a cure myself.

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Senior Member

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Posts: 124
Date: Thu Nov 1 2:42 PM, 2007
RE: My Crosslinking & PRK experience
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Thank you cloudd for your kind words.My name is Harrys.Hope we meet one day.We now have a common thing.Xlinking and Prk!!

Yes thats the treatment i think that everybody should do because you are setting free from this stupid disease.Wait one month and your vision will become even sharper and that my friend will make you so much happy.I mean HAPPY.lol

Dr Kanellopoulos is my leader,your leader now and i think it will become everybodies leader in kc.We now have our powerful answer to kc.

Keratoconus Vs PRK-XLINKING.Our vision almost 20/20 without anything to our eyes! shows the winner.


Best Wishes






-- Edited by Zeus at 15:53, 2007-11-01

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Member

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Posts: 19
Date: Thu Nov 1 9:09 PM, 2007
My Crosslinking & PRK experience
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Cloudd congratulations on your success.

I have underwent a crosslinking and I'm planning to do a wavefront prk in that eye too. Zeus, I'd like to make you a question if you don't mind, why do you say is better to have both operations at the same time?

and another one sorry :P I'm sure Dr Kanellopoulos is awesome but are you sure he is the best? I mind, there are some experienced doctors worldwide


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Phase Two

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Posts: 479
Date: Fri Nov 2 12:05 AM, 2007
RE: My Crosslinking PRK experience
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Thats a great acheivment so far Cloudd, and time is still on your side, well done. You deserve it.

Joseph,

From what Zeus was telling me and the Video on it, by combining the two treatments the Epithelium only needs to come off once. Plus the Dr has noted that Crosslinking after PRK may have advanges than the other way round. Zeus knows all the in's and out's of this combined treatment more than anyone here in why the way its done in Greece is a certain way. Obviouly the end results being great results. Also the Dr doing this has far more experiance and follow up data than probably anyone.

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Date: Fri Nov 2 5:27 AM, 2007
RE: My Crosslinking & PRK experience
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This method does look good to me, of course if the Dr says go for it ...he CAN do it, so to me people thinking about this combined way MUST see the best with this and he is found in Geece.

The contact lenses industry is big and would rather milk money from anyone who needs contact lenses, there are many more who have KC who don't know they have it as they gravitate towards needing vision correction.

The Dumb idiot C Warren put this summary together which can be seen clearly that she is trying hard to play with words the effect of balancing a hard lens on a cone (WHEN THERE ARE STUDYS THAT SHOW THIS CAN LEAD TO HARM, not to forget part-time vision, this is because SHE NEEDS THEM and has a transplant, so she is all for that too!)

"...discussed fitting philosophies: flat vs. steep, concluding that scarring is more related to disease severity than to fitting decisions and that fittings should be based on vision, comfort, wear time, as well as what is happening to the cornea."

YES... WHAT INDEEDED IS HAPPENING TO THE CORNEA... SHE THINKS SHE CAN MAKE OUT THERE IS NO HARM AT ALL !!!

she is the one promoting Transplants are a success... BECAUSE SHE HAS ONE! SHE IS PROMOTING TRANSPLANTS!! furious And she need contact lenses after!! BE AWARE OF THAT NAME!!! furious



-- Edited by Kreading at 02:50, 2007-11-03

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Senior Member

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Posts: 124
Date: Fri Nov 2 4:54 PM, 2007
RE: My Crosslinking & PRK experience
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Hello people.

To begin with,joseph you can ask as many questions as you like.All kcers are my friends.

You mention about having a wavefront PRK but the treatment is topography guided PRK.

Its a whole different method my friend.Your cornea is becoming smoother and more normal using your topography meaning the exact corneal map of your cornea.So,that is one reason that is absolutely safe.Its not a straightforward PRK.You are correcting your cornea with flying spot laser(Cutting edge technology) so there is no risk.

People are thinking that PRK is something like Lasik but they have lack of Knoweldge.With the limited topography guided PRK you are correcting your cornea peripherally and not centrally as the standard PRK.Another bonus of safety.

I would like to inform the people in here that NO WHERE in the world this treatment is being performed.Its an innovative treatment by Doctor Kanellopoulos and his scientific team.They are going to present it at the third collagen crosslinking congress.They also have presented at past congresses at United States(Las Vegas).

My doctor is the only doctor that has started to perform this treatment and it is his creation.If you search the internet you will understand that.I am very happy that it happens to be Greek and i feel i was lucky because i didnt have to go abroad to get the treatment as Cloudd made his journey to find a cure of his kc.But Cloudd is an achiever for me for taking decisions like that and i am speaking of cure of kc because you dont need glasses or contact lenses afterwards the treatment if you are at a moderate stage of kc.

Kcers which have above 400 microns and the more microns you have, the best candidate you are for this treatment.People should know that.

Also joseph you asked me about Limited topography guided Prk after crosslinking.Your corneas now are crosslinked,meaning more rigid.The main thing here is that you must adjust the flying spot laser you are having and that is a little tricky.I have read to articles and Doctor K words that you need to have state of the art lasers.That is crucial.

Allegretto Wavelight EYE Q 400hz flying spot laser with a special T-CAT software for especially aspheric corneas and irregural astigmatism like ours.And thats very great for us people.Because this state of the art machine is like IT KNOWS OUR PROBLEM.Also,it is working together with your topography(fingerprint of your cornea you might say).Nothing is left to luck and the most important afterwards you are performing crosslinking.As you can see it has plenty safety nets the treatment, me and Cloudd has perfomed.

With conversations with my doctor he mentioned that 200 people has perfomed the treatment and the scientific data is from 2002.5 years results.All are stable.So,when i heard all this information i decide to undergo the treatment.Not just the crosslinking but together with the limited topography guided prk.

When you have performed crosslinking and afterwards the topography guided prk you may develop some haze.Because your cornea is more difficult to reshape and reduce the irregular astigmatism.To escape that the one thing is to perform first as Cloudd and I the PRK and then the crosslinking.The other thing is that if you develop haze this will fade away with one year.The haze you might develop will be little to medium.Also,mitomycin C is being applied at your cornea so that eliminates haze.I am not a doctor to answer at best this question.For me as i have told to sajeev if someones has above 400 microns should visit Dr K and discuss his kc problem with him.I think that Dr K is a leader to Kc and he is proving it with the best way giving to me almost 20/20 vision without anything to my eyes.

Best Wishes,

P.S Cloudd tell your opinion also my friend.People should hear and learn.All this time mother****ers doctors are telling to us about transplants and other bull****s now we have our answer to them.




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Senior Member

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Posts: 124
Date: Sun Nov 4 9:30 PM, 2007
RE: My Crosslinking & PRK experience
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Hello.

Cloudd reply to the post mate and tells us how you see and analyze before and after your vision.

It has been a few days i think.I heard in news that Canada is striking from heavy storms!!!So,stay in!lol.

All the best,






-- Edited by Zeus at 15:43, 2007-11-05

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Member

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Date: Mon Nov 5 8:50 PM, 2007
RE: My Crosslinking & PRK experience
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Zeus thank you very much for your extensive answer, I know it takes time and I'm very grateful for it, thanks too for the exact specification of the machine, that is great info. Sorry too for my mistake, I ment topography-guided PRK not wavefront of course, I kept calling the other way I don't know why.

I hope you don't mind I would like to discuss your answers. About the haze I see the point, if you get desephitalized twice you get twice the possibility of getting it, It's good to hear mitomycin is used too because as you say the chance is reduced. I myself have a minor haze in my crosslinked eye.

About the cornea being more difficult to reshape after the crosslinking I don't see the point. That is some people say about the INTACS without any scientific evidence, that could be reasonable but I don't believe it anyway. But with the PRK I don't understand why the toughness of the cornea would be a factor for the laser to burn less effectively.

However I stand in my opinion that the cornea changes after the ccl , I am not 100% about this and that is why I discuss the matter, but it seems reasonable to think that if the cornea changes the vision can worsened in the long term.

Finally I don't know if the nomogram of Doctor K is unique but I can assure that I know four european doctors that are performing the topography guided operation

Please notice that my opinions may be contrary but I don't want to be aggresive at all or claim that I have the right data, absolutely I would like to thank you and the others for improve the debate

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