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Post Info TOPIC: advanced Keratoconus
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Member

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Posts: 3
Date: Fri Oct 3 12:34 PM, 2008
advanced Keratoconus
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I would like to ask you advice if UVA-Riboflavin Cross-Linking of the Cornea is possible method to treat 4 steps, advanced keratoconus or some other methods to avoid the cornea implantations.

I am 28 years old; keratoconus had been diagnosed when I was 17 years. I wear RGP contact lens about 11 years.

Today, the doctors say me that I have 4 steps, advanced keratoconus. Still I can wear RGP contact lens.

I tend to avoid the cornea implantation operation, so could you please advice me what to do, as I can still wear RGP contact lens, but I understand that this situation may be continue for short or may not and if it is possible to treat 4 steps, advanced keratoconus with UVA-Riboflavin Cross-Linking.

I would be thankful to hear your advices,


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Senior Member

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Posts: 147
Date: Fri Oct 3 2:00 PM, 2008
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leoabashidzea Welcome !

I would say (and please ask a CXL Dr as well)

With regards to advanced KC and CXL:

1) The thickness of the cornea does matter, if you have more than 400 microns that good for CXL treament.

2) If its lower than this the corneal thickness can be increased with eye drops/distilled water some more before treatment, but its best to have 400 microns in the first place, because the more corneal thickness you have the more you will keep due to CXL.

3) The corneal profile gets more regular after CXL, this helps a lot for contact lens or glasses wearers.

4) You may well get some flatterning of the cornea - there is a good chance of this.

5) if you can wear contacts ok, thats verry good news, CXL will help you stay that way, with-out having to chase prescriptions, if there is a change to progression happening, because your corneal strength is at the lower end of the range right now. After CXL your cornea will be more like a normal strenght cornea.

Best Regards

K

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Member

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Posts: 3
Date: Fri Oct 3 6:59 PM, 2008
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thank you very much for your answer.

do you know if intacs are possible to treat advance keratoconus? and any specialized CXL and intacs Hospitals?

thanks

leo

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Senior Member

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Posts: 147
Date: Sat Oct 4 5:52 PM, 2008
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Hi leoabashidzea,

Intacs works better at the milder stages, but if all is lost and contact lens intolance has set in, then before a transplant Intacs can be tried to help the patient get back in to contact lenses, it looks like you are okwith contacts, so there needto take this route.

Its difficult to say where its best to be treated, the centers with the most experiance you will find mentioned on the forum, please look through and pick one which is suitable to get to for you.

Best Regards

K

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Member

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Posts: 18
Date: Tue Jun 2 1:21 PM, 2009
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Hi there, I also had stage 4 kc and this february i had mini ark and crosslinking performed in Rome .All other doctors told me i needed a corneal transplant but doctor Lombardi said he could help.
This week i got my eyes tested and i was 7 /10 and 6/10 and with the aid of a simple pair of glasses my vision is now 10/ 10 and 12/10. my vision is also constantly getting better and i see improvemnts all the time
Surely worth a try --- Good Luck Archie

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Executive

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Date: Tue Jun 2 5:36 PM, 2009
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Hi Archie,
I also had my keratoconus treated at the Lombardi Clinic (some years ago now) and to date have been very pleased with the results. Lately I havnt been following the keratoconus community as closely as I used to.... there was a time when I'd spend hours in front of my PC trying to make sence of KC and its various treatments.... but to be honest now my eyesight is so good that I really dont have too anymore.

Even after my treatment I tried to reasure myself that I'd made the right decision (many people were very vocal in telling me that I'd made a huge mistake) but time has found them to be incorrect and, as I said, I am very happy.

I know it sounds corny but Mini ARK really did change my life. I expected (hoped) that the treatment might at least ease the constant strain of keratoconus but I never thought that the results would be so good. My eyesight is still not perfect but keratoconus no longer plays any part in anything I do; where as before it affected everything I did.

The thing that struck me most in the past was the reluctance of many (including doctors) to even consider it as an option (with such limited treatments available I would have thought every possibility would have been investigated fully?!?)... I think you said it best Archie... 'it is surely worth a try'. :) :)

All the best for your continued improvement,
Hari

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Member

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Posts: 9
Date: Thu Sep 29 6:13 PM, 2016
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