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Post Info TOPIC: Dominics PRK and crosslinking story


Senior Member

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Posts: 143
Date: Wed Nov 19 11:07 AM, 2008
RE: Dominics PRK and crosslinking story
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I'm not too sure, it may have been the swelling when I had my CXL, which was near enough a year ago. The cornea "goes all over the place" for a few months, i only know about limited PRK from reading about it here, I did not have that done myself, I was waering glasses before my treatment and did not require a lot of change to get better vision.

Are you still using the eye drops ? are you getting dry eyes at all ?

Best

K

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Date: Wed Nov 19 5:04 PM, 2008
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still taking maxidex twice daily and duotrav once daily. I use alot of liquid taers throughout the day, and started using a non-preservative liquid gel at night. I will discontinue the maxidex on december 09.

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Date: Sun Nov 23 3:31 AM, 2008
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vision seems to be getting worse. Reading is now even getting hard with the left eye because ghosting is getting worse. The right eye is completley usless for far or close vision. Ghosting seems to be getting worse by the day. starting to suffer from extreme headaches. Have an appointment with an optometrist on monday to try and help correct vision with spectacles a little bit during healing. Is now over six weeks since the surgery and my vision is still a nightmare compared to pre-op. The only way I can type on the computer now is by squinting to bring ghosting together in the left eye. Right eye is hopless for reading still.

Dr.k told me right eye should be pretty good by two months but I am beginning to worry because I am not seeing any positive results so far. can not read acuity chart in my room any more because the ghosting seperates all the letters so much. The right eye can barely even see that there is a chart on the wall. However the lighting in my room may not represtent proper optical acuity testing(although all my friends can read it fine).

will post on monday to let you know how things went at the optometrist.Anxiety is becoming much worse than ever as days progress, trying to relax as i know stress can prevent healing.

-- Edited by pereira951 at 03:32, 2008-11-23

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Executive

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Posts: 151
Date: Sun Nov 23 11:33 PM, 2008
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Keep in contact with your Dr and also remember that different people heal differently and the also healing times can vary. With CXL alone K reading go up for the first months in to the recovery process and then there is fluctuations before settling down again.

Best

-- Edited by Remo at 23:34, 2008-11-23

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Date: Tue Nov 25 12:01 AM, 2008
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I am now legally blind!!!

Right eye...would not even read 20/400. corneal scarringf apperant.corneal nerves showing more than last week.

left eye 20/400

worst news of my life!

can the cornea fluctuate this much during crosslinking?

my corneas are to thin now to get a proper pressure test with the machine she uses. Can only wait and see now. Optometrist will contact dr.k tommorrow to see where to go next in terms of regaining my quality of life with correction. spectacles will only give me worse double vision at this point.

I also do have dry eye now.

-- Edited by pereira951 at 00:03, 2008-11-25

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Executive

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Date: Tue Nov 25 11:31 AM, 2008
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The fluctuation I talk about are from my CXL treatment ex[periance only

Hang in there Dominic, I have read that sometimes there needs to be a enhancnent by doing a re- treatment with any surgey as it needs to be done in steps and there is room for that with doing PRK and then CXL afterwards, this is one of the reasons its done in that sequence.

Please keep updating us

Remo

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Date: Thu Nov 27 3:54 AM, 2008
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went to my specialist today to check my eye pressure....left eye 16mm, reight eye 18mm.

the specialist has a different way of testing vision, they zoom in on certin lines to get rid of the diplopia, at the specialist i tested 20/40 and 20/50. this is not clear vision though. dr.k told me to relax and that goal should be reached in 2 -4 months. has been almost two. I still can not read vision test on my wall. Will be taking topogrophies around middle of december and will post for all to c. night vision is my main concern as the abberations halos and ghosting from street lights are so large and uncomparable to pre-op. Waiting to hear from dr.k to see if rgp's would be an option right now just to help with quaility of life s driving is a necessity for my buisness. I have put my whole life on pause for this op, as I would of had to with any other op, but improvmrnt is still not yet showing.

even though i traveled across the world for this op, and dr.k is very busy, he responds quite rapidly to emails which is a great help. I still feel i put my self in the best hands for treatment of kc. Patience is of the essence.

My main concern is that the ghosting in my eyes seems to be getting worse. pre-op the left was 20/20 and was not yet considered keratonic, but vision is now way worse and ghosting gets worse by the day. When checking that machine that focus's on your cornea(that baloon image) the right k readings have decreased i believe and the left k readings have increased.

For anyone thinking of surgery.....kc progresses at different paces for everyone, in my case I was damned if I did, and damned if i didn't. Treatment is starting to look alot more positive for us in this day and age compared to just a few years ago. Hopefully in the near future kc will be as easily treatable as many other things. Especially that knowladge about the disease is becoming mare and more available.As I said before, they are even advertising about it here on the radio here in toronto.

My optometrist told me when she was in university they taught her that the disease affected 1 in 5600. studies are now showing that it affects 1 in 1000 and possibly even more.

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Senior Member

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Posts: 113
Date: Thu Nov 27 6:16 PM, 2008
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dr.k said rgp's are not a bad ideas right now. they will not affect the healing. My question to everyone is how much do they usually cost? my last lens fitter charged 1000 dollars for two kc lenses.......they fit well, for the week they worked....but is that standard price? thnxs

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