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Post Info TOPIC: April 1st - My CXL experience


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Date: Mon Apr 4 3:13 AM, 2011
April 1st - My CXL experience
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HI.......This is my first post here on the forums... so bare with me :)

Some background: I am a 35 yr old female. I live about an hour south west of Toronto and was told about 12 yrs ago that I had KC in both eyes. I was alittle freaked out when I found out, but over the years I have dealt with it. Now fast forward to Sept 2010.....

Sept 2010 - I had my first visit with the Bochner Eye centre in Toronto. Wonderful place, the people there are fabulous. They took lots of tests and told me I was a perfect person for CXL. So I decided I would think about it and then get back to them. I did think about it and then I scheduled CXL in both eyes for April 2011.

March 2011 - After a few months thinking about it I started to get alittle freaked out about the possibility of not being able to see in both eyes. I read alot online about experiences and they as well freaked me out. I was worried I wouldn't be able to see...so I called and cancelled the 2 eyes and went with the right eye only......



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Date: Mon Apr 4 3:19 AM, 2011
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April 1st 2011 - today was the big day......I woke up nervous and worried if I was making the right decision.........was this really worth it.....was I doing this for all the wrong reasons...what if I can't see again in my right eye...what if I can't drive again...

well off we went to Bochner......

When I got there they did a few more tests and gave me some eye drops...paid my $2700 and off I went to the "operating room"

Marcel (the man who really does the procedure) was fabulous. Dr. Stein only take the Epi off.then leaves. Marcel does the rest.

the procedure itself is really really boring.. your laying there looking straight up at a pool of yellow drops and your bored....no other way to put it...just bored. Then comes the staring at the green blinking light for 30 mins......boy it was a good thing Marcel was there to keep me company...

After your done, they take you donwstairs to the room adn the Dr looks in your eye and makes sure your lense is on ok and they gave me a box of chocolates (yes you read that correctly) and off you go...drugs and drops in hand.....



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Date: Mon Apr 4 3:34 AM, 2011
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Now the good stuff.........How did it really feel...

Day 0 (CXL evening)Fri April 1st: When you leave the eye is still frozen, so it doesn't hurt at all. the freezing starts to wear off and there is a little discomfort. I was told to take the Tylenol 3 when I left, so the pain would be minimal. This was a good idea....BUT I should have taken it with some food... VERY naseous...

Vision was blurry... almost as if someone had taken my glasses and rubbed butter on them.

Night....they give you a sleeping pill and some freezing drops. I took both. Didn't help with the sleeping, I was still naueaous from the T3 ealier. Eye was a little sore. NOTHING like I had read on other pages. The eye itself was only a little pink.

Day 1 (Sat April 2nd): Woke up feeling great....eye was alittle sore...more of a dry eye feeling. No redness...Stomach still alittle upset, but better. Vision alittle better. I was able to go onto the laptop for 10 mins with the font at 250% before I had to stop. Able to watch tv for a bit. Have to wear the sunglasses inside... very sunny outside and in the windows. Using the Bion tears every 40 mins or so and applying my medicated drops every 4 ours. So far so good. Saw the eye Dr today and she said my eye looks fantastic. Looking at me you would have no idea I had this done....

Day 2: (today Sun April 3rd): Woke up feeling great again. Eye is still the same. only a little sore...lubricating it every hour or so........I find it makes a difference. Still hard to see out of the eye. Watchign Tv is ok but laptop time is harder. My eye Dr opened today just to see my eye. She says the Epi is growing back nicely and we might take the lense out on Tues. She also said it looks fantastic. Best she has seen so far. Took a shower today. Used my eye shield, to stop any splashes of water. It was alot easier than I thought to shower. Also went outside grocery shopping. Was alittle hard reading labels, but had some help.  So far this has been a great experience. No negatives at all.

There have been alot of little things I think that have helped....

  1. Using Bion tears every hour has really helped
  2. Sticking to the medicated drops as required
  3. Resting my eyes when they are tired
  4. Not over doing things those first few days
  5. Wearing the protective glasses inside and out
  6. Not RUBBING my eye

I will continue to update as the process goes along. I have already typed alot and my good eye is tired. I have an eye shield on right now, as I wear it to sleep (I am a major eye rubber)

 



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Date: Mon Apr 4 2:29 PM, 2011
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You are fast as I missed your posts until now! well done, your experience sounds like one of the best, you get it down very well. Glad you are through the worst of it, most people notice change for the better visually, for up to a year (sometimes things even improving little by little even beyond this) post Op but mostly by the first few months, and the average recovery time is said to be around the six month mark. If your progression is treated that is the aim with the treatment. Do you need contact lenses at all beforehand or is it glasses ? if so your cornea may well get morec regular and so aiding more due to this with them.

Since you had a bandage contact lens placed after the Op, that would have helped with your eye lid from touching the place where the epi (the skin of the eye) was removed for the treatment to take place which would have caused you much more pain without it placed.

When are you thinking of doing the other eye ? its childsplay !smile

Keep updating us, as early on vision can fluctuate.

Wayne



-- Edited by Wayne on Tuesday 5th of April 2011 05:10:26 PM

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Date: Tue Apr 5 3:20 PM, 2011
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Wayne: Thanks for your reply! It has been an interesting journey so far.
About 3 years ago the Eye Dr tried contacts for my vision. After a year of differnt contact lense types and different solutions, we went back to glasses. Sometimes the vision is worse than others.
I haven't really thought of when I will get the other eye done. Maybe closer to the end of the year. I have a few things I need to do this summer and fall, so maybe Dec....all depends on timing. I am taking 3 weeks off work. I work on the computer 95% of my day at work and I wanted to be sure I was ok before going back...it's going to be a LONG 3 weeks without work.....

CXL Update:
Day 3 (Monday April 4): Eye was VERY dry today. I have upped the Bion tears to about 1 every 30 mins. The weather outside is cold and windy, so when I went outside it dried the eye very fast. Went to see the Eye Dr. She told ethe Epi hasn't grown in the last day. Kind of a bummer....BUt she says we all heal at our own pace. I go back to see her on Tuesday. The eye was horrible at night. Very itchy and painful. Today was by far the worse pain day. BUT again nothing like I expected, so it wasn't too bad. The lense is still on so the pain is less. The eye Dr checked my vision......I wasn't able to see much. She said there is still alot of haze, but once the epi grows back it will be better. And she feels hte reason why my eye is so sore is that I am using it too much. Watcing tv and on the laptop way longer than I should. BUT iam bored.....so Tuesday will be a lazy day.

Day 4 (Today): I woke up a few times throughout the night with dry eye. I think alot has to do with the heat at my house. It is very dry in my room. I might look at getting a humidifier for tonight. see if that makes a difference. I took a shower today without the patch on over my eye. SO MUCH easier to shower with out it....Almost makes me feel normal again. The vision in the eye today looks better. Less blurry. Still itchy, but expected. I go back to see the eye Dr today. hopefully there has been some epi growth. We will see.....I have decided to not watch alot of TV today. I need to ley my eyes rest. the good eye (my left) is getting worn out and I don't want to make it worse..(says the girl who's sitting on the laptop typing, hey the screen is at 250%..)

I will update more in a few days.

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Date: Tue Apr 5 6:15 PM, 2011
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Not to worry you Jungleja but did the Dr say its ok to shower before the Epi had grown back ? I would ask about the itch too just in case, but may be I am overly concerned, however can I be when eyes is the subject matter!

I am sure you are flowing orders!

And yes the haze, it will fadec away in time, things may seem slow moving but if you got a good eye its much easier, its good you thought about it and started with one eye at a time.

Wayne



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Date: Tue Apr 5 6:20 PM, 2011
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It is said that patients "feel better" (are more relaxed) after treatment with CXL (even if the recovery is not over), a sense of finally being treated, do you find this Jungleja ?

Wishing you a speedy recovey

Remo



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Date: Tue Apr 5 10:57 PM, 2011
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Remo: I do feel that feeling of relief.......I was really worried before the procedure, but much better mentally now. It has also helped that the recovery has gone well....such a relief. Have you had CXL?

Wayne: I asked abotu showering and they said as long as I wear the eye shield and keep my eye closed it is fine. I was able to shower without getting any water in my eye. I am just that talented :)
The name is Jane by the way. Jungleja is my screen name. Have you had CXL?

I saw the Eye Dr again today and she was very happy to see that there are islands of Epi growth. She did say there is not enough to take the lense out yet, but she did say that she has never seen a lense so clean and clear on Day 4. I think its all the Bion tears I use, keeping it clean. I see her again tomorrow morning then again on Fri. Hopefully on Fri the lense will come off. She said in most cases it is dangerous to keep the lense on for a over a week in case of infection, but since mine is clean there is no worries about keeping it on past Fri. We will keep monitoring it.

It has been really sunny and cold and windy today, so I stayed inside all day. The wind killed my eye yesturday...here's hoping tomorrow is better.



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