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Post Info TOPIC: My Keratoconus Experience from Diagnosis to Intacs and Cross Linking
Naomi

Date: Mon Sep 10 1:49 PM, 2012
RE: My Keratoconus Experience from Diagnosis to Intacs and Cross Linking
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Thabk you sceaux-I find myself lately becoming one of those negative people who feels doomed and like I will never be able to live a full normal life again-thank you for the encouragement not to give up!! I think I need to try intacs ASAP. Ethan-how is your vision now??

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Member

Status: Offline
Posts: 3
Date: Fri Jan 18 10:35 AM, 2013
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Naomi, you can check with your doctors if in your case all is Ok for that procedure, in my case it help me a lot, I hope also that for other people will be the same, but always we need to know that each of us is different, so same results cannot be expected. As I said before, important is to have a thinking that in some way life could go on somehow. If you will do this soon, please let us know about results.



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Mido

Date: Thu Apr 4 10:23 PM, 2013
I had crosslinking but not improvement
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Thanx for your information.

i have keratoconus. And bad segmastism. Im -6 in my right eye. And 4.5 in my left one. I went for crosslinking in both eyes last year its been now 7 months but no improvement .my question is can i go for intacs or i should wait.? And thas intacs helps getting 20/20. ? And is its permanent ? Thanx for help. My email.  Freiheit12@hotmail.fr



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Deb


Veteran Member

Status: Offline
Posts: 96
Date: Sat Apr 6 10:29 PM, 2013
RE: My Keratoconus Experience from Diagnosis to Intacs and Cross Linking
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Mido,

Get a few diferent medical consultantions, opinions vary, and each patients particular corneal configuaration.

If your intolarant to contact lenses and there are no more contact lenses to try then its worth thinking about surgery, however results are better with both contat lenses and surgery when the KC is not overly advanced. Sometimes surgery plus contact lenses maybe very well an option as well.

Debby



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Mary

Date: Sat Apr 27 2:36 AM, 2013
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Hi 

i had crosslinking 17 days ago, i found the procedure plain less, yet the post op was very painfull thank god for strong painkillers 

i am starting to see much better than week 1 asandals  it's true that vision is worse at first week than before surgery,  very sensative to light and wear sunglasses at work, (look very cool)

have to make the best of it, and patience, as its a long progress 

is there anybody out there which had the same procedure and have some good long term  resultd 

thanks for getting back to me 

 

 

 

 



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Executive

Status: Offline
Posts: 155
Date: Mon Apr 29 11:18 PM, 2013
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Well, 12 years on I have never looked back since...my kc is still stable and vision did get better slightly (which is a bonus that I did not know would happen). I wear soft toric lenses and get good enough vision to drive...I wish that I did crosslinking when I was diagnosed, then maybe usual soft lenses could be used, but I am happy that I am still able to wear soft toric lenses without too much difficulty.

Have a speedy recovery

Wayne



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Skye

Date: Sun Jul 14 4:25 AM, 2013
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Hello all, I'm 20 years old and was diagnosed with KC about 2 years ago. Although it was a shocker I was fitted for RGP lenses and never had much of a problem. Just recently in April my left eye had really progressed and my dr. Told me about crosslinking. I got it done last month and I Found it pretty uncomfortable but I felt like my vision slowly started to improve. My surgeon also talked to me about intacs was comfortable with performing the surgery a month after my crosslinking. So as of two days ago I now have intacs as well as had the crosslinking done. My vision now seems to be a bit worse again and it's quite annoying. I know this is a long process and one must be patient but it is hard. I dint leave my house much and have to get really close to things to see. My summer has been consumed with eye appts and procedures. My eye drs. Are really optimistic that I will obtain amazing vision since I'm so young. And I sure hope so!! I start school again at the end of August and praying my vision will be great! I guess patience really is a virtue. Best wishes to all, Skye

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Executive

Status: Offline
Posts: 151
Date: Tue Jul 30 12:53 AM, 2013
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Good luck to you. It seems with most correction methods, it becomes more worth while, when Crosslinking is used. It takes time, wait it out and keep the positive attitude you have. Your getting good advice from your Doctor.



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