All of us Vs Keratoconus

Members Login
Chatbox
Please log in to join the chat!
Post Info TOPIC: My Keratoconus


Executive

Status: Offline
Posts: 397
Date: Sat Nov 19 8:04 AM, 2005
RE: My Keratoconus
Permalink   
 


Excellent post Vikram,
Here we see yet another case of a kcer finding his way around the need for graft. I read your story with great interest, please keep us up to date with your progress.
It was also very pleasing to hear that you had made contact with Joseph by phone... the more support that we can be to each other the better!!

Regards,
Hari

http://www.miniarkdatabase.com

__________________


Senior Member

Status: Offline
Posts: 107
Date: Sat Nov 19 9:56 AM, 2005
RE: My Keratoconus contd--- extended version DAY 3
Permalink   
 


so it is decided we go to Hyderabad to L V Prasad Eye Institute  www.lvpei.org


from the website


This institute was founded by Dr G.N Rao who is now president of W H O prevention of blindness he returned to India in 1986 to establish L V Prasad Eye Institute, after having a successful career in the United States as an academic ophthalmologist. Dr Rao received his basic medical education in Guntur, Andhra Pradesh, and completed his postgraduate training in ophthalmology at the All India Institute for Medical Sciences, New Delhi. He went to the US in 1972, where he was trained first at Tufts University School of Medicine in Boston, and later at the University of Rochester School of Medicine. He continued to practice and teach in Rochester until his return to India in 1986. His areas of specialization include diseases of the cornea, eye banking and corneal transplantation, and community eye health. He has published over 180 papers in national and international journals, and has contributed several book chapters. He is currently the president of the International Agency for the Prevention of Blindness, in which role he leads the global initiative to eliminate avoidable blindness by the year 2020.

From the beginning their focus has been on extending equitable and efficient eye care to the underprivileged. The Institute's charter aims at providing 50 percent of its surgical services free of cost to the economically disadvantaged. In collaboration with the World Health Organization (WHO) and the International Agency for the Prevention of Blindness (IAPB), they have designed and implemented many innovative community eye health programs. Each day, 200 people who cannot afford eye care, receive care from some of the best eye health professionals, while hundreds more benefit from LVPEI's rural affiliates and satellite clinics in urban slums.


 i got to know that dr rao was known to my distant relative an ophthalmologist  Dr Vinod lakhanpal and Dr Varinder Nirankari from Baltimore USA ( Varinder belongs to my city ) they  asked me to mail them  my reports which were forwarded  to Dr rao


      we reached hyderabad on the evening of 17th october' 2005 , our appointment with Dr Varinder S Sangwan  the head of department in corneal and anterior segment  was fixed for 19th, oct'2005   


 


 


  



-- Edited by Vikram at 06:52, 2006-03-22

__________________


Senior Member

Status: Offline
Posts: 121
Date: Sat Nov 19 12:02 PM, 2005
RE: My Keratoconus
Permalink   
 


] Meanwhile I had visited "The Eye Foundation" in Coimbatore few months back to probe the possiblity of using Wavefront Lasik for post-graft visual correction. The doc was of the opinion that the outcome is unpredictable & there's only 50% chance of sucess of clear vision. He also added that pre-graft KC's are not all suitable for Lasik procedure because of the thin cornea.



-- Edited by Vikram at 06:56, 2006-03-22

__________________
Anonymous

Date: Sat Nov 19 12:52 PM, 2005
Permalink   
 

Apparently PRK is ok on kc corneas and so even better on transplant corneas, i suppose... check out the topic in "kc sciences"


I think Lasik is a big no... no...


Vikran just love your writtings mate and you Epean!



__________________


Senior Member

Status: Offline
Posts: 107
Date: Fri Dec 2 9:06 AM, 2005
Permalink   
 

 


 atlast have got my sclerals from hyderabad , stayed there for a week , got the orientation asked all the questions to which the doctors and optometerists were most happy to answer .


the most interesting thing for me to learn was that the best companies which market artificial tears contain preservative contradicting the companies plea that they dont , technically i am supposed to instill refresh artificial tears without preservatives  in my sclerals for creating a liquid bandage but since they are not available in india i will have to substitute with normal saline


i am experiencing ghosting in right eye  but  getting an amazing 20/20 vision individually , ghosting is due to the irregularity in corneal surface and mild opacity prevailing  i guess i will have to forget about it and remain happy , the doctor himself was a myope , he joked with me that he himself did not have as good vision  as mine due to undercorrected power  that was prescribed  him .



-- Edited by Vikram at 07:00, 2006-03-22

__________________
Anonymous

Date: Fri Dec 2 10:50 AM, 2005
Permalink   
 

Hi Vik,


They recommend using regular saline with sclerals over here in the uk, so don't worry about that. Also its good to hear that your doing good with your new sclerals (and these lens you could say are the best when it comes to not moving around on your cornea unlike other contact lenses)


Well done Vik, you should feel very proud of yourself!



__________________


Senior Member

Status: Offline
Posts: 121
Date: Sat Dec 3 6:48 AM, 2005
Permalink   
 

Good going Vik ! Happy to know that Boston Sclerals gave you tremendous relief.

Joseph Eapen

-- Edited by Eapen at 06:50, 2005-12-03

__________________


Senior Member

Status: Offline
Posts: 107
Date: Sat Dec 3 11:50 AM, 2005
Permalink   
 

 


  i have been advised by my doctor to instill  "Patanol" (Olopatadine) for vkc,  


 the doctor says it is better than "cromal"which i am presently instilling this drug is not available in india , i have requested for a prescription from a doctor in the US .


any idea anyone what is vkc ?? is it an allergy ?? i believe it has a close relation with kc and its progression .



__________________
«First  <  1 2 3 46  >  Last»  | Page of 6  sorted by
 
Quick Reply

Please log in to post quick replies.

Post to Digg Post to Del.icio.us

www.kcfreedom.org

Knowledge Works