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www.KCGlobal.org -> www.KCFreedom.org - The Global Keratoconus Freedom Group -> Family Support, Help and Advice -> Epi-on Crosslinking tomorrow 4 my son USA - I'm nervous
Post Info TOPIC: Epi-on Crosslinking tomorrow 4 my son USA - I'm nervous
Deb


Senior Member

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Posts: 112
Date: Thu Jun 7 12:04 AM, 2012
Epi-on Crosslinking tomorrow 4 my son USA - I'm nervous
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Emily, hey we understand !smile

Its the least invasive way to go, and IF its needed you can still opt for epi off, if ever its needed. Its your totally what your pefferance is after your reseach (as long as you have done the research its totally up to you!).

Everyone with KC really needs to be checked 6 to 12 months at least, to check for changes what ever the treatment is or where the case may be that no treatment is required...these cases still needed to be checked every 6 months to a year or more as needed.

Keep to the appointments and the directions from your medical team, and you will be fine.

My best to you,

Deb



-- Edited by Deb on Thursday 7th of June 2012 12:05:14 AM

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Emily_G


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Posts: 33
Date: Thu Jun 7 6:21 AM, 2012
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Tomorrow my young adult son gets epi-on crosslinking in one eye.  I've done a lot of research,  so has he.  We all feel this is the right decision.  Nevertheless, I am extremely nervous. 

Any procedure would make me a bit apprehensive. ( Hey, I'm the worrying type).  Here in the USA, a clinical trial, with no published results, is the best treatment available.  All the available evidence, though, is very encouraging. So we are going forward. 

If anyone has anything encouraging to say, please reply.  Otherwise, I will let you know how it goes.

Emily_G



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Emily_G


Veteran Member

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Posts: 33
Date: Thu Jun 7 12:31 PM, 2012
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Deb - thanks 4 your reply and encouragement !! It is a big relief to communicate with someone who understands. Emily

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