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Post Info TOPIC: Two years after cross linking epi on
Muffs

Date: Wed Feb 12 6:21 AM, 2014
Two years after cross linking epi on
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Thought to share my story in case it might be helpful...

I had cross linking done in December 2011, epi on. The procedure wasn't too bad and I remember I recovered fairly quickly. I did not experience worsening vision or burning sensations afterward.

my kerataconus was determined not too advanced by my ophthalmologist so I continued to wear soft lenses.

I had my cornea measured last month and my Sim K reading came out 48 which is higher than my previous reading. I feel disappointed that my cornea is thinner, even after cross linking.

i feel that my eyes are not as dry as they were before the procedure. I remember wanting to rub my eyes all the time b/c it felt like there was stuff in them. I don't anymore.

anybody else have cornea readings that got better after cross linking? 



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Executive

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Date: Thu Feb 13 1:54 AM, 2014
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Kmax relates to steepness...its microns readings for thickness. Its not that the cornea gets thinner, it gets more dense and so this is not part of any thickness readings that are taken.

The steepness may mean the cornea has got in to a more regular in shape, depending on where its got steeper. The same topography machine should be used to check for changes.

The main thing is if there has been progression. Epi on is less invasive, but there is deeper crosslinking that occurs with epi off. However if there is progression after epi on...epi off can be tried.

Its highly unlikely for progression to take place after crosslinking when preformed within the criteria.



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Date: Sun Feb 16 11:14 PM, 2014
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I've had epi-on cross linking about 6 months back on my right eye. My doctor says that the cornea has stabilized but I am almost sure that ghosting is worse than before. Outdoor vision during day time is definitely better than before but indoor vision and night vision are noticeably worse than before crosslinking.

The K values at the center of the cornea are slightly better than before the surgery but the K maximum values is about 0.5D (approximately) steeper than before the surgery. I had the surgery done within 6 months of first getting diagnosed and I did not have significant progression before the surgery so I am not sure if the surgery worked.

Now my left eye which is almost 20/20 (with glasses) seems to be getting worse. My doctor wants me to get epi-on for left eye as well but I am not sure if I should get epi-on or epi-off done (since I am not sure if epi-on really worked).

It looks like most US centers are performing epi-on now, does anybody know centers which perform epi-off? And if any expers are reading this any suggestions as to which way I should go?

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KVY


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Date: Tue Feb 18 12:15 AM, 2014
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Has there been any significant change on topography and with corneal thickness ? Have you asked if haze might still be present and more time needed to resolve?

I would hold off doing anything until I have trouble wearing glasses/contact lenses.

Have a read of this following, its a new article on CXL http://www.optometricmanagement.com/articleviewer.aspx?articleID=109627



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Date: Tue Feb 18 6:49 AM, 2014
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Doctor says it is stable but K values for both eyes increased by 0.2 to 0.5D and thickeness dropped by about 5-10mm. I don't want to wait until they become significantly worse. Right now left eye which hasn't been operated is still pretty good but has progressed over the last year. Currently I can still drive in most conditions with just glasses. My progression may not be very rapid but I am sure will continue to worsen before it stabilizes. I have had Keratoconus for only a year now. If cross linking can halt the progression for sure without any major complications why wait till it gets significantly worse?

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KVY


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Date: Tue Feb 18 6:54 AM, 2014
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@Megan I assumed you were asking me .. may b u we 're not..

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KVY


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Date: Tue Feb 18 10:36 PM, 2014
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I read in a few places that progression is deemed as being 1D over a year for epi off CXL (there is a small percentage in risks...its less with epi off but there is less crosslinking, however no one knows how much cross-linking is needed/would be enough for any individual with KC...the more crosslinking then better some may say, but with taking the epi off there is risks, be it small, but these risk is less than allowing KC to progress to a transplant.



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