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Post Info TOPIC: My TPRK - CXL experiance at Bochner


Veteran Member

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Posts: 59
Date: Fri May 9 1:35 PM, 2014
RE: My TPRK - CXL experiance at Bochner
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Anonymous wrote:

After your surgery at Bochner, did you wish you had chosen LASIK md? I'm having a hard time choosing, for me it's the post-op care that I look at rather than price/experience. 


 If the post-op care is most important to you, I'd suggest finding a good optometrist that you like, get it done at Bochner (who literally wrote the book on the laser they use for the surgery) and then get your optometrist to do the post-op care.  Your fee for Bochner will cover your post-op care with your optometrist.



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Lisa

Date: Thu May 15 4:28 PM, 2014
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Good morning!  I came across this forum today.  I have Keratoconus and cxl is being done on my right eye at 3pm Eastern Time.  I'm in New York and am seeing Dr. Donnenfeld.  He performed a transplant in my left eye in 2000.  That graft is perfect.  Now it's time to fix the right eye. 

Currently, I cannot see the E with my right eye.  Actually, I cannot even see that there's an eye chart with that eye alone.  I was fitted for scleral lenses in January and I have to say that they are a miracle and are life-changing.  The gas perm lenses hurt my eyes and whenever I was exposed to an allergen, my eyes would burn - causing the contact to move, etc.  VERY painful - on a daily basis.  The scleral lenses cover the entire cornea and I haven't had a day of pain in 5 months!!  However, a month after I was fitted, an exam showed that my cornea was steepening and was touching the lens already.  So off I went to my transplant surgeon for options.  His exam yielded 2 options... a transplant in the right eye or try cxl to stop the progression of the Keratoconus.  I don't mind the scleral lenses and even after the transplant in the left eye, I still need a lens in that eye - so I opted to try the cxl.

I'm not sure what to expect today.  The doctor did mention that I cannot have the epithelium removed (as is common with the procedure) because of how advanced my disease is.  So I believe I'll have a different chemical strength of drops used for a longer period of time.  He's optimistic that I may be able to put my scleral lens back in that eye after day 6!  Which will be great!  I'm sure I'll need a new prescription for my right lens after around 3 months as the cornea flattens.

I'll update after the procedure!

 



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Executive

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Posts: 155
Date: Thu May 15 6:48 PM, 2014
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Your in good hands with Dr D, he is well known.Sclerals are comfy. If they work for you then thats great.

Lets keep your cornea from getting worse, the most minimal way possible.

You do feel that you have been "treated" afterwards and with that, feel better

The very best to you.

Wayne



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Anonymous

Date: Mon May 19 1:03 AM, 2014
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Thanks Wayne!

I'm 3 days post procedure.  Here's how the day went...

Drops started and continued every 2 minutes.  Checked after an hour.  More drops for the next 20 minutes.  Then 10 more minutes, and then again, another 10 minutes.  Dr. D wanted to make sure there was enough riboflavin in my cornea, as I couldn't have the epithelium removed.  The lens clamp was noticeable, but tolerable.   I did start to feel a burning during the procedure, so more anesthetic was added and in 5 minutes, I was done.  A little light sensitive on my way home, but all else was fine.  There was some pain when the anesthetic wore off, but when I woke up on Friday, I was fine. 

I knew that it would be challenging not being able to wear my lens in that eye.  I'm nauseous all the time unless I'm sitting down doing nothing.  Walking in the mall made me feel like I was getting car sick.  I'm quite sure my husband, while sympathetic, was happy I couldn't shop anymore. 

So here I am at day 3... I kept my let lens out today so it wasn't a drastic difference between the eyes.  Not as nauseous today.  And i don't know if it's my mind playing tricks on me, but I was actually able to see a 7-up bottle across the table today.  And see the word 7-Up.  Dr. D said I can put my scleral lens back in on Tuesday because it doesn't sit on my cornea and I don't have a bandage contact in.

:)



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Executive

Status: Offline
Posts: 155
Date: Mon May 19 1:04 PM, 2014
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Well, it was a walk in the park! in comparison to other treatments. Well done in seeking out whats right for you.

There may well be more setting down to go, but the "worst" of it is over with the healing.

You may find a small tweak may be needed to the prescription of the sclerals, as the cornea moves the right way.

Best of luck

Wayne



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Lisa

Date: Thu May 29 9:27 PM, 2014
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I'm 2 weeks post-CXL.  Zero pain, no more light sensitivity and I'm able to wear my scleral lenses without an issue.  I don't really see a difference with my vision using my sclerals, but maybe a slight tweak will help once my cornea flattens and stabilizes.  :)



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Anonymous

Date: Mon Jul 20 8:56 PM, 2015
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I had bilateral IOL (intraocular lens/contacts) inserted at this place by Raymond Stein approximately four years ago. I also had keratoconus and had the corneal crosslinking done with a "50 50 chance" and a shrug from the surgeon. The post operative drops I was prescribed had wrong directions on them and when I returned on the weekend for my followup appointment, the man who looked at my eyes said "it was no big deal" ~ which I find hard to believe because they were steroid drops to control swelling...A medication with an important purpose such as this, being the medication that was errored IS a BIG DEAL to me because it is MY eyes that were operated on. Subsequent dealings left me feeling angry and unheard. It was obvious I wasn't paying to have much to do with him. There were other things that happened along the way which added to my discomfort. Presently,I have a loss of clarity in the eye that had the cross-linking, an early cataract formation in that eye and bilateral glaucoma. I paid $7,000 for these procedures. I was barely in the presence of stein at all...even when I was he barely spoke. Even during my initial surgery he said nothing to me at all. One visit which I asked for, to ask him why the 'reading glasses' weren't working, and to gain some understanding, he answered a couple of questions briefly and then he said "Come with me" My thought was he was taking me somewhere to show me something or to explain something more. In fact, the "Come with me" was his escort out to the booking desk where he told the woman to "find an appointment time according to (my name's) schedule" for another visit in the future. You cannot begin to know how I felt when I realized I had been given the bum's rush...how humiliating, demeaning and ignorant. I guess I wasn't some "celebrity" that had a photograph on their waiting room wall so I was not important enough. I would never go back there. All they care about is their money. And you are not paying for any of his time except his surgical time. I no longer wish to go there and see a local opthamologist. Even when the opthamologist called to request further information to be sent to her by fax, it still wasn't sent three days later. I have no reason to refer anyone to them, and if I could do it all over again I would have gone elsewhere.

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