All of us Vs Keratoconus

Members Login
Chatbox
Please log in to join the chat!
Post Info TOPIC: Blogging my experiences.


Executive

Status: Offline
Posts: 151
Date: Fri Jun 20 10:50 PM, 2014
RE: Blogging my experiences.
Permalink   
 


Your doing great in finding out your options. Click on the attachment on this post, which another patent recently sent to me on this.

Best of luck, Remo

 



Attachments
__________________


Veteran Member

Status: Offline
Posts: 29
Date: Sat Jun 21 8:30 AM, 2014
Permalink   
 

Remo that is a fantastic study! Wow I cannot believe the improvement by doing a triple procedure over a few years. I think this is something which gets iterated a lot but seldom really considered. I went into my consultation thinking ok I've done my research, and believe me a lot, I almost went in there thinking OK I want TCAT then CXL as if I knew the best treatments for me. The whole hype of Athens protocol potentially may leave patients, like myself, forgetful that there are other options. Although very successful, it is great to see that more is being done and tried in this day and age that will hopefully give us good vision by conventional standards.

I know we are in for a long fight, but it is a fight worth having!



__________________


Veteran Member

Status: Offline
Posts: 73
Date: Wed Jun 25 10:29 AM, 2014
Permalink   
 

What gets me is that not so long ago and in many places still, its the two step approach of 1) Contact lenses > 2) Transplant !

 



__________________


Veteran Member

Status: Offline
Posts: 29
Date: Sat Jun 28 1:01 PM, 2014
Permalink   
 

I have decided to go through with surgery. On the 24th July I will be having one intac segment placed in my left eye with cross linking to follow up 3 months later. Very excited, just want to see some progress. Hope you are all well.

__________________


Veteran Member

Status: Offline
Posts: 29
Date: Fri Jul 25 8:12 AM, 2014
Permalink   
 

Hello everybody.

Yesterday I had the intacs procedure done which was fine didn't really hurt. The irritation and swelling was unreal though after the surgery. Vision about 6 hours was fantastic. Never had it that good in years. My eye was really swollen still so was thinking it would continue to improve as it calmed down. Well I woke up this morning and bad news. Vision had detritus to where it was pretty much before the surgery. The ghosting had improved so much but it is so frustrating as my new vision was amazing and now it seems like I'm back to square 1. Has anybody else had experience of this?

__________________


Veteran Member

Status: Offline
Posts: 73
Date: Fri Jul 25 8:52 PM, 2014
Permalink   
 

I had two segments put in to my left eye...my story is different in that when one was taken out the vision, then on slowly got better!

No two KC is the same! Check with your ophthalmologist if there is something else going on...I do know it took a long while/months (for me) for things to settle down.

 



-- Edited by Bobby on Friday 25th of July 2014 08:54:01 PM

__________________


Veteran Member

Status: Offline
Posts: 29
Date: Tue Jul 29 6:17 PM, 2014
Permalink   
 

Day 5 of Intacs.

My progress as of yet has been small but progress nevertheless. I am noticing that my ghosting is starting to look more structured, and centralise more on the object in view. Before intacs when I placed a white object over a black background the ghosting was 360 and fairly spaced from the main object which obviously changed when I changed the distance of my eye to the object. Lights are not appearing as 180 degree splashes of light anymore, again it is more structured and getting ever so smaller as time goes on. Clarity is still crap but I guess I am comparing it to my 6/6 RE so need to manage my own expectations better. I have had a bad few days in terms of this, I keep expecting to wake up and see clearly but this is unlikely even though it happened post surgery. My ghosting was instantaneous, wasn't a gradual thing, so I know as quick as it came it may be as quick to go.

Not a great deal of light sensitivity or pain but I do have annoying bloody big ass halo's around light sources when caught at the right angle which I have never seen before which I have read can be a risk of surgery but I have also read that these typically die out months after surgery. So, pretty positive I guess, onwards and upwards.

Best,
Jon

__________________


Veteran Member

Status: Offline
Posts: 29
Date: Thu Aug 7 10:27 PM, 2014
Permalink   
 

Today was my two week check up at the Royal Hallamshire in Sheffield, UK. Let me just say, a miracle happened. My vision driving down, crap, no other word, I couldn't see down the road through my left eye and my ghosting was ridiculous. I did all the mandatory checks, UCVA preop was 20/50, this time I was 20/100. I wasn't surprised and the verdict from my optometrist was that it was rubbish and he expected a better increase. Well, he did all the eye tests again, and to my amazement, I could read easily the 20/20 line with ease which was a huge improvement because before I was guessing. This he was happy with, I may have lost one line but gained more.

My astigmatism went from 2.5D to 0.25 in just two weeks, I asked him what the vision would be like with the prescription that I had looking through the machine and this is the best part, he put a regular soft daily disposable contact lens in and the clarity was AMAZING! I haven't seen like that in years. But the best part was my ghosting seemed to improve by about 90%, no upward ghosting at all, very minimal indeed, slight downward ghosting but I didn't mind as it isn't obvious at all. I even stood up and felt really dizzy and was told this was due to your brain using both of your eyes for the first time in a long time. I am over the moon with my vision. Today is the first day in months I felt like the old me, I am very positive about the future as the CXL that I am having in a few months should get the cornea flatter and hopefully improve my contact lens acuity even more. Even though I am now long sighted due to the procedure, not really fussed to be honest, as I achieved my goal which was to reduce the ghosting. So I am hopeful about the future, best case for me now is probably soft lenses and perhaps glasses to boost the acuity!

__________________
«First  <  1 2 3 47  >  Last»  | Page of 7  sorted by
 
Quick Reply

Please log in to post quick replies.

Post to Digg Post to Del.icio.us

www.kcfreedom.org

Knowledge Works