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Post Info TOPIC: Blogging my experiences.
Deb


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Date: Sun Aug 10 6:10 AM, 2014
RE: Blogging my experiences.
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Jonny, Thats really is awesome! Your cornea is probably become more regular in shape. An irregular cornea is one of the biggest problems in KC. The other problem being the progressive thinning of the cornea and (sometimes) high astigmatism, however having a regular cornea makes vision correction with lenses much more easier.

You may well experience more flattering (be it small) with CXL, although your doing great already!

Debby



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Date: Thu Sep 18 9:02 PM, 2014
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Hello everyone... had my 2 month post op appointment today. Results are ok, went from 0.25/0.5 astigmatism to 1.0.... I knew my vision had dipped slightly so was expected. My consultant said that my eye is still evolving so not to worry. Cannot help but feel slightly pessimistic however. My left eye still reads 20/20 minus 2 letters with correction and although not as clear due to the astigmatism I still managed it with relative ease. I am booked back in 2 months time to get another reading and then if all is stable I will get booked in for the cxl. Preying it is, today I couldn't see the 20/200 line due to all the ghosting which is worse than before but somehow my vision jumps to 20/200 with just soft lenses. Everybody is different right. So is this a normal thing that I'm experiencing? Hope I'm not the only one. Cheers

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Posts: 29
Date: Thu Sep 18 9:03 PM, 2014
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Typo: 20/200 ucva and 20/20 bcva. Weird huh

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Posts: 73
Date: Fri Sep 19 1:51 PM, 2014
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The main trouble with KC is its irregularity  ...so if it becomes regular...even glasses or soft lens should help some what more.

It may be that your KC is more regular now than before, even if the numbers show an increase.

Your recovery is still occurring as well

The other trouble is the progression (i.e thinning of the cornea) this can be treated with CXL.

Good luck...you should see a slight improvement after CXL but it does not occur for everyone.



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Posts: 29
Date: Thu Nov 6 2:39 PM, 2014
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Afternoon all,

Today marked just under 4 months post op. Good check-up today. My left eye has gained one line so I am now back to 20/50 which is where I was pre-op. Also my astigmatism has gone from 1.5 then to 0.25 immediately post op then to 0.75 and now 4 months later I am now at 0.25. Crazy but as my optometrist told me there is no usual response to the intacs. My consultant has agreed to do the cross linking now so not too long now before I get that done with a view to doing laser possibly up to 2 years from now to let everything settle down.

My ghosting is pretty stable at the moment, rarely changes shape and with my contact lens in I just have fairly prominent downwards and slight lateral ghosting. Compared to where I was pre-op this is great as before it was so debilitating seeing two or three objects on top of each other. Feel like I am making good progress and hopefully 5 years from now when I have cross linking, laser and let it all settle down for a good few years my eye will be pretty much bang on.

Still no change in my right eye, slight orange at the front of the eye with the curvature on the topography chart but I am told this is very normal, no signs of KC in that eye and my consultant is hopeful that due to my age (27) it is unlikely that it will progress in this eye.

Thanks for now.

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Date: Mon Jan 19 8:20 PM, 2015
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Hello everyone,

I hope that you are all well. This Thursday I undergo CXL at the Royal Hallamshire hospital in Sheffield UK. Not nervous for the procedure as I know it will be a doodle, just the unbelievable pain that I will get as soon as the drops wear off. I remember how painful the intacs were and CXL is historically much worse.

So far my symptoms are pretty constant, small offshoots of rays from light sources but nothing too drastic. Hopefully one year from now and I will be getting ready for T-Cat. Anyway all the best everyone.

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Executive

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Posts: 155
Date: Tue Jan 20 8:26 PM, 2015
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If they bandage the eye where the eye lid is closed and it helps to keep the eye lid still, then there should not be much pain. There is 'pain' with the slightest move of the eye lid over the treated area. Most people report that after 24 hours, things improve a lot with pain. Some of the 24 hours you will sleep and just rest while the hours.

You may be given numbing drops and/or painkiller tablets.

The pain should pass by soon enough, but it may peak and then get better, where the pain is more of a discomfort and then a slight discomfort until it goes away.

Good luck, but I dont think you need it as you have done your research.



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Anonymous

Date: Sun Jan 25 12:02 PM, 2015
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Hello, 4 days post op. I do not want to sound dramatic but this has been some of the worst few days of my life. The procedure was fine. I did not enjoy the epithelium being scraped off that was the worse thing. It was quite tricky to keep my eye on the uv as well but was not that bad considering. Day 1 post op. This was very painful. A mixture of acute pain in left eye, dull numbing of facial area around the eye. Too swollen to open, could only manage a few as ones with my unaffected eye as well. Slept ok, had about 6 hours. Day 2 post op. By far the worse day ever. Everyone is different but the pain was unbearable. A mixture of sunburn on your eye, someone scraping and stabbing your eye, having grit caught in it, then washed over with fire. Insane thudding headache throughout. This persisted from 1500 hours to 0700 hours the next day. 0 sleep that night. Dropped off for a bit however that day. Day 3 post op. The pain subsided today. I noticed I was practically blind in that eye due to the corneal haze which in told will subside after a few weeks. The ghosting has flipped to lateral bit I will have my contact bandage in until Thursday so I assume things may pick up then due to the amount of medication trapped in my cornea. Day 4 post op. pain has subsided again. Light sensitivity not as bad but still there. Managing to open my unaffected eye for a bit longer now. Still very tired and weak. Sleeping a lot better. And that's where things stand at the moment. Will be taking some more time off work I think, will take an extra week off as I just want to rest and recuperate. cheers.

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