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Post Info TOPIC: Blogging my experiences.


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Date: Sun Feb 15 4:09 PM, 2015
RE: Blogging my experiences.
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3 Weeks Post op

Light sensitivity has pretty much gone. My partner informs me that my haze appears to be getting gradually better but I cannot see any improvement. My vision is still very poor indeed, tried a soft contact lense on the other day (soft disposable power 1.5) and it didn't seem to do hardly anything. Slightly improved the ghosting but by a huge margin. Quite down at the moment with it as it does make every day life hard. Just hoping the haze clears up and the ghosting improves.

I have lots of questions but as I know no two people's KC is the same so I guess time will tell how it all pans out.

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Deb


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Date: Mon Feb 16 7:11 AM, 2015
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Its very early in the recovery process. I know this aint much to go by, but keep your chin up!



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Date: Sat Feb 21 9:09 AM, 2015
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1 month post op No real changes. Eye sight is still really bad. No light sensitivity or pain. Ghosting is still severe. Just hope to god things get better. I realised that the rotation of my ghosting has rotated left from where it was pre op until now, I guess due to the swelling of the eye. Booked in with the optometrist in a few weeks, think I will have to have a toric lense for sure this time.

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Date: Sat Feb 21 4:47 PM, 2015
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Yes chin up! I had t-prk & CXL november 2013. I am just now feeling good with soft daily in my LE. My RE is a wok in progress regarding best lens results. Trialling dif options. The younger & sooner you get it done the better the results. So have faith, I'm pretty sure that if I were your age my LE wouldn't need correction. But alas there was nothing to be done when I was younger except RGPs. And it does take 6 months for the corneas to clear & stabilize (it appears even longer for me). I know it's very hard to be patient but hang in there!

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Date: Sun Feb 22 8:06 AM, 2015
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Thanks Georgiagirl. Yes that's the frustrating part is time. I know these things take a long time to recover. Just have to put up with it I guess. I hope your recovery is going well!

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Date: Tue Feb 24 9:40 PM, 2015
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Jinny, did you have ghosting prior to your surgery? Did you have epi on or off? With who. Did you have the surgery?

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Date: Fri Feb 27 12:02 AM, 2015
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Johnny, in regards to my recovery I think it's going fine but slow compared to others. I did read another person say theirs was about a 14 month period. It's not something that I can describe or noticed at an exact time. Also, the aftercare in the US/Georgia area is nil! Doctors will not talk about it nor try to help me. They would just do a bad refraction give me a bad prescription & get me out the door!!! The local trial study guy was even upset/jealous that I had gone to Europe for the procedure. Although my RE would not qualify for the study nor was I keen to be a guinea pig. Unfortunately i did not foresee these aftercare issues before I went to get my procedure. So since returning home I have gone to several doctors and contact fitters and wasted a lot of money, travel & time on them. But I have finally found a great team of guys who are enthusiastic to learn and to help me. Because of this I have anew sense of excitement to have accomplished arresting this horrible disease. So keep the faith and know that time is the answer.

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Date: Fri Feb 27 12:25 PM, 2015
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Door 60, Yes I did have it prior to surgery. The ghosting came around March time 2014 and got very gradually worse. Contact lens wear did not do anything for my eye but I must add I did not have an RGP lens fitted. This was due to the optometrist explaining to me that the chance of success with one RGP lens is very reduced as it takes a lot to get used to. So I accepted this and left it. I had one intac placed inferior to my cone in my LE in July of 2014. This made a huge difference, my uncorrected vision remained poor but my corrected vision improved a great deal as my ghosting completely altered and made things manageable again. I could play rugby and not see two balls floating through the air, result!

I had eli off CXL, the pain was incredible and since my bandage lens was taken out the vision and ghosting has got very bad, I think it has stabilised now as I am 1.5 months post op. I imagine things will start getting better after 3/4 months in terms of ghosting. After the pain I went through an RGP lens will seem like a walk in the park so that is good. I had my surgery done with Sheffield Vision Centre in the UK and they are amazing, great team, great technology and my consultant is amazing, compete faith in him and he is a nice guy on top of that.

Georgia Girl, yes it always is frustrating as everybody is different. I'm so sorry to hear about your experience, it does seem like there is still a big gulf between US and Europe still with Keratoconus treatment and management. Hopefully the FDA will get their finger out and approve CXL to be mainstream treatment. That is great to hear that you finally have a good team behind you. I shall hope that you recovery continues to be well and wish you all the best. Let me know how things progress.

Cheers.

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