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Post Info TOPIC: Blogging my experiences.


Veteran Member

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Posts: 29
Date: Tue Apr 28 9:44 PM, 2015
RE: Blogging my experiences.
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Hello everyone,

I am at the 3 month post op.

I do not suffer with any pain at all, I do not have light sensitivity or dry eye. My visual quality is very bad through my left eye, I think I am around 20/200. The ghosting is incredibly bad with little sign of improvement. My haze reduced from the initial surgery but there is still a large chunk of it left just off the centre of my pupil. I visited my optometrist for my 2 month post op where he checked everything. Although he says haze does not always clear up, they can still perform topographical guided laser still so I should see some improvement as my cornea gets more regular. I think at this stage I will most likely end up with a hard contact lens after laser surgery two years from now. My vision is so so bad :(.

On the flip side my right is incredibly good. The optometrist checked it thoroughly and there are no signs of KC. It is also within a group of about 10 eyes throughout his entire long spanning career which have very good vision. So my right eye continues to compensate to such a large degree. I am hoping the haze clears up but who knows. From the research I have done, it seems that months 3-6/9 is where the eye starts to really heal so we shall just have to wait and see as ever.

All the best everyone.

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Date: Sun Nov 1 1:15 PM, 2015
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Hello everyone,

I hope all is well. I haven't blogged for a long time so I thought I would send this message. I am 8 months post-op from CXL epi-on. In terms of vision, it is as bad as it has ever been. I am noticing changes in my eye so I know things are changing. I do not know whether it is for the better at this point as I am yet to have the topography of my eye mapped. I will be having this done next week when I am next at the Royal Hallamshire so fingers crossed. I do not have light sensitivity so that is a bonus. In terms of haze, I remember it being significant for a long time, but now it seems like it has reduced a fair bit. There is still some haze there but I am confident that this will go in time. I will update you all after my trip to the hospital next week.

Take care,
Jon

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Executive

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Posts: 155
Date: Mon Nov 2 10:45 PM, 2015
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Jonny,

Am I correct in thinking you have not had any vision correct surgery done (ie Intacs, TPRK) nor has RGPS been worn or tried successfully? and just the epi on carried out ?

Without reading through the posts again...I thought you had, had Intacs done ?

Wayne



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Date: Tue Dec 22 9:11 PM, 2015
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Hi Wayne, No I have had one intac inserted as well as Epi off. My vision is as bad as it has ever been with no sign of improvement. My consultant wants me to do tprk next summer but I am very sceptical as nothin has seemed to work and I am worse off. I have never tried hard contacts so I think I am going to go down this road instead of more surgery as I'm too pessimistic at this point to do anything more.

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Date: Sun Jan 10 10:48 AM, 2016
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Hello all,

Last week I went for an eye exam at the optometrists and it was a very very useful day. All eye exams were done including 3D scans of my eye leading to the optometrist stating that I have a regulag astigmatism now, would you believe it. The cross linking has flattened the cornea, making it the same curvature as a normal cornea. My kera readings are the same as a normal eye. My cornea thickness was measured and it is now comfortably above 500 microns (I was diagnosed as 492 in 2013). My astigmatism measures at 2.5D for both long and short sightedness so I'm told that it balances out and my eye is now very much regular.

I still have very poor vision with bad ghosting but I'm told that this is solely due to some cornea scarring that I have due to CXL. I was fitted for a hybrid lense and I am correctable to 20/20 in my bad eye with uncorrected around 20/100. My right eye is still looking perfect. I feel like I am coming to the end of my journey and the last hurdle for me is correcting my vision and significantly reducing my ghosting which I am hopeful this lens will do!

 

All the best, 

Jon



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Posts: 29
Date: Sat Jan 20 9:49 AM, 2018
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Hi everyone,

I had a checkup at the hospital last week so I thought that I would give you all an update. I am 3 years post epi-off CXL and 3.5 years post intacs.

The good news is my CXL worked! No signs of progression at all. The highest point in the eye went from something like 47 to 42 which is great news. The optometrist said that there was very minor movement between scans but nothing of significance and I have been measured as having consistent scans and readings over the years so they are now 100% that the CXL has completely stopped the progression.

We discussed my Intac, which for me, was a complete waste of time as it reduced astigmatism to 0 for a few weeks/months then returned to my previous readings. I will have to leave this in as I don't want to mess with it, and I can't imagine that my surgeon will want to take it out afterwards.

In terms of vision, it's pretty bad out my left, but I've decided to give contacts another go. I also realised that I was using regular contacts for the past 3 years whenever I wore them and didn't use any for astigmatism. So i'm hopeful when this new batch arrives it won't dramatically improve, but just enough so that it quells some ghosting so I don't have headaches all the time.

The interesting thing is my cornea, I have a scar from the CXL, which is quite light and not too opache, relatively minor but still there and very deep. Luckily, it is just outside my visual axis but just over the the highest irregularity, or peak, on my eye. Another weird thing is that the thinnest point in my eye, which is this scar tissue, is 379 microns, with other areas of my eye in the mid 400 range. So i'm really not sure what the scans picked up on my last post above as it seems very different. It hasn't progressed as they were the same reading immediately after post CXL. The optometrist indicated that this was due to the scar.

So the options is what now? The optometrist said that laser would be a leap of faith, as the scar made the unpredictable even more unpredictable. He also mentioned that wavefront may be the way forward so that they can reduce my readings and get rid of my long sightedness, and achieve best case 60/70% of my prescription without contacts/glasses.

Well I really don't know where I stand. As weird as this sounds, for me, the goal of any laser isn't to improve my vision, it's to reduce my ghosting, and I know that this is due to the higher abnormality in my eye. The optometrist said that as this isn't in the visual axis it would probably be left. He did say though that he is not a surgeon and my consultant goes way way above his knowledge and expertise but it was only his thought.

I don't know what to do now. I was always banking on being able to do laser after CXL eventually when the time was right, but now it seems that there may be a slight chance it won't be performed due to my scar. But my surgeon has never indicated this in the past. He has always been quite pro. So I'm really confused and don't know what to think. Ive always thought if I had the money just get a transplant and be done with it.

What is other peoples experiences of laser, wavefront or topography? And any ideas about laser after scarring due to CXL. Anything would be appreciated.

Cheers,
Jon

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Deb


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Posts: 96
Date: Sat Jan 20 1:22 PM, 2018
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Jon,

To be honest Opticians cannot give medical advice. Also they are not keen on laser generally as it goes against their business of selling lenses, be it glasses or contact lenses.

I do believe you would get a suitable option going forward if you would consult with Drs who are providing the treatments you was interested in. They would need to run some tests first of all to see if you are suitable.

Every good wish, Deb



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Posts: 29
Date: Sun Jan 21 1:09 AM, 2018
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Thanks Deb,

The place I go to is a private clinic within the NHS, so it has optometrists and consultants as part of the same team. It just so happens that I was only booked in with the optometrist that day.

You are right, they cannot give medical advice. I guess I was always clinging to the hope that laser would make things more manageable for me. Let's see what happens...

Jon

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