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Post Info TOPIC: My life as a Kerataconic and hope for the future as mine has regressed


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Date: Wed Jun 11 3:29 AM, 2014
My life as a Kerataconic and hope for the future as mine has regressed
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Mine is a familiar story like so many others I was diagnosed when I was 21 yrs old.  I had no idea what KC was and I was fitted with my 1st pair of RGP lenses and it felt like I was rubbing sand paper on my eyeballs.  My sympathetic optometrist told me I had to persist and persist I did for over a month until I got accustomed to them.  That was 20 years ago after sitting in so many chairs and research and trying to find a cure and yet I was told so many times that there was NO cure and that it would progress and and I might or might not need a corneal transplant.

In 2006 I went to Chatswood where they began doing Cross Linking and thought that this would be the cure that I was so desperately seeking.  I was there all day, it was the worst day of my Kerataconic life.  I finally saw Prof Gerard Sutton who informed me that it wasn't for me it was too advanced and it was only for those with mild kerataconus.  The experience was so traumatic that I NEVER looked for any "cures". 

My Kerataconus was progressing and my future was looking more like me getting corneal transplants. 

In October 2012 I went to my optometrist and he fitted me with glasses to read (an age thing we thought).  In June 2013 I went to my optometrist again as I couldn't tolerate my contacts any more and I was complaining that I could see better with my glasses and the strain was unbearable.  I sat in that chair again and to his shock and my own my vision had improved and my contacts were way to strong.  My left eye was originally -11 Diopters and was down to -7, my right eye was -9 Diopters and was down to a -5.  For the next four weeks I sat in that chair doing test after test.  After six weeks I was fitted with my new contacts I even had the option for soft contacts I have NEVER been given that option.  I settled on my new RGPs and we had to do a refit as my brain couldn't adjust to such a drop.  My contacts for my left is -8 and -6 for my right.

My corneas have no scarring and even an experienced optometrist could be forgiven for not picking up that I am a kerataconic.

May 2014 I've had my eyes tested and my contacts are a bit too strong but I want to get my glasses changed before I get new contacts.

What lead to the regression?  At the beginning of 2012 & 2013 I had my own fat injected under my eyes.  The by-product of this was that the stem cells regenerated my corneas.  I had also started taking Vitamin D and this I believe has helped as I was deficient.

My life has changed significantly as I now have the confidence to drive with my glasses AT NIGHT, I NEVER did this previously.  I read without my glasses and I can SEE.  I am also grateful to Prof Sutton for rejecting me that fateful day in 2006 as this would have skewed my results and been attributable to CXL, rather than those building blocks of life and Vitamin D.

My cosmetic surgeon gave me my eyesight back and to me she is a miracle worker and my optometrist Peter for seeing me through this for so many years.  I am in no way advocating that everyone goes out and has their fat injected under their eyes and believe that we should always err on the side of caution.  I know there's a lot of research going on in Europe where they insert the stem cells directly into the corneas with mixed results.  But what if it is that simple.  I have always believed that my kerataconus was environmental and not heredity.

I now believe there is a cure and if more kerataconics have the same positive effects that I have had that they will seriously look into doing this simple and inexpensive procedure which has relatively no risks but many benefits not only for us but for many others with corneal diseases.

F.

 



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Deb


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Date: Thu Jun 12 7:43 PM, 2014
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Fleafighter,

There has been occasions where people have reported regression in their KC. I am very glad your one of those in the number that have had regression (some do report of it being aided by nutrition).

What is new is what you say on the "injecting of your own fat". Have you got any more info. on that? which clinic did this ? any web links to the Dr/clinic/treatment ?

I hope you the best

Debby



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Date: Fri Jun 13 2:03 AM, 2014
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Hello Debby,

I had the fat injected for rejuvenation purposes, my eyes were constantly black and tired. None of us expected the results that were achieved. My cosmetic surgeon did this in Sydney and it's a standard cosmetic procedure (especially in the US) for facial rejuvenation. All you need is a good/trusted cosmetic surgeon.

The procedure is simple they remove fat from your stomach area, freeze it and when needed put through a simple procedure and then inject it. I had mine injected around my eye area. No downside, if it doesn't heal your corneas, you at least have a rejuvenation effect around the eye area. I have thermal image photos from another clinic that I went to last month (totally unrelated) that had my photo from October 2011 and another done in May 2014 and they couldn't believe the transformation and thought it was from their laser treatments.

I also have my own photos and my surgeon has photos.


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Date: Fri Jun 13 2:20 AM, 2014
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I had the fat transfer procedure too. Unfortunately it didn't have any impact On my KC. This was about 6 years ago.

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Date: Fri Jun 13 3:53 PM, 2014
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Hello Georgiagirl,

How long after you had the fat harvested did you get injected?

I can only speculate why it worked for me.  Mine was frozen for a year prior to my first procedure and 2 years for the 2nd.  Is it the combination of blood plasma and how much is injected?  Is it the skill of the surgeon?  Is it based on whether your KC is caused by environmental factors?

There are only more questions no answers.

I also don't rub my eyes as much as I used to.  The itching was so bad, especially after sitting at a computer all day that if I could take out my eyeballs and scrub them with a wire brush I would have.  I still get the odd week that I feel "itchy" and I use an over the counter antihistamine eye drop.  Fantastic.  I no longer see black dots or have ghosting.

When I went overseas last year, it was the first time I didn't feel anxious traveling with my glasses on the plane because I could see.  I wasn't plotting on where I would be able to find a clean spot to wash my hands and put my contacts on or take them off.  I wore my script sunglasses everywhere.

I'm no longer heading in the direction of a corneal transplant and for that I can't wipe the smile off my face.

 



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Date: Sat Jun 14 1:12 AM, 2014
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I'm am very happy for you!! I think it is amazing! My fat wasn't frozen just harvested and injected during same treatment. So maybe that makes a difference. It would have been great if it did work for me! I had the TPRK + CXL done in November. I finally found a specialty fitter here in Georgia that I'll be seeing soon. So I'm hoping for soft lens so I don't have all the irritation I experience with RGPs. Like you, sometimes I could scrub away at my eyes. Less now since the procedures but still hating the RGPs. I feel that my vision has improved even more recently and am excited to see what Rx I end up with. Oh yea, going Monday to see about getting new lenses in my glasses until my benefits are effective in august and can see specialty fitter for CL. I will post any exciting changes that I find out then and/or in august. I am also due this month for topo scans. So it will be interesting to see if my corneas are still flattening from the CXL.

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