All of us Vs Keratoconus


Members Login
Chatbox
Please log in to join the chat!
Post Info TOPIC: Hello to all!


Member

Status: Offline
Posts: 2
Date: Tue Feb 14 11:01 PM, 2006
Hello to all!
Permalink   
 


Hello all!


Well, I've done it.  As some of you have read on the Yahoo forum, I went to Rome last month and got mini-ARK.  I am just starting on the road that so many of you have travelled already.  I hope you don't mind if I am full of questions.  As my eyes heal and I come to grips with what comes next I am almost alone in America (there are only two of us over here!), but I am not alone because I know that I can have my questions answered at the same time. 


First, I want, like many of you have, to express my gratitude to Dr. Lombardi.  I think we all know that he doesn't HAVE to perform and continue to develop mini-ARK, and he doesn't HAVE to keep going despite being ignored (or worse) by the international medical community, and he COULD just quit and travel, or engage in his hobbies, or do whatever he'd like, but he doesn't.  He continues to develop the art and science of mini-ARK and for that I am grateful to him.  If you've had mini-ARK you have met Dr. Lombardi and will most certainly agree with me that he is a tremendously gifted surgeon, an artist and scientist, and most importantly a good man.


Of course I am only about a month into the recovery, so I would like to hear some of your stories from one month, two months, six months and on.  I seem to have a little bit of dry eye, especially in my right eye, which was the worst and required more incisions.


I keep feeling a compulsion to rub my eyes (again, especially the right), but I do not as I know "DO NOT RUB THE EYES!".  For some strange reason I also keep wanting to look out of my right eye.  I keep wanting to "check it out".  I don't know if it's because it had the most improvement, or if it's because it's still the worse of the two.  I don't know.  Did any of you experience this?  Also, before the surgery, my halo in my right eye were below the point-source light - and it almost was a halo - it was kind of oval-shaped and very bad.  Now there is a streak from the point-source light going to the upper right (almost to the other side of where the halo was pre-surgery, but the halo isn't as bad anymore).  Also, I seem now to be a bit far-sighted now where as pre-operation I was near-sighted.  I think that I will have to wait a while for my eyes to settle in and decide what they're going to do.


I think I could use another surgery on my right eye.  I intend to see Dr. Lombardi next time I'm in Europe for work or next January if I don't make it to Europe this year for work.  How many of you have had multiple surgeries?  How long did you wait between surgeries?


Also, I have volunteered to go to Miami if a doctor there invites Dr. Lombardi to the US.  I would prefer the meeting to happen in Houston, where I live, but for this I would go to Miami.  I have offered to have my medical records sent to the doctor in Miami as well.  I guess we will see what happens with that.


Thank you for welcoming me.  You should know that this web site played a large part in my decision to have mini-ARK.  I hope that, as a result of my experiences, more people in the US will consider mini-ARK.  People deserve to have information and options and they deserve to be able to make up their own minds.


Mike



__________________


Executive

Status: Offline
Posts: 397
Date: Wed Feb 15 1:49 AM, 2006
Permalink   
 

Welcome Mike,
As you can imagine I am following your progress with great interest-- I think your experiences will put the spot-light on mini ark. This can, in my opinion, only be a good thing.
I wish you all the best,
Hari

__________________
Anonymous

Date: Wed Feb 15 7:41 PM, 2006
Permalink   
 

When i first heard your story, It was such a momumental moment, with the distance invoved, having with the internet its good and bad aspects, the cultural differeances ect ... and your happy now than before... and i'm glad you are...


We have always just wanted to keep kc information following by what ever means... to me in kc you need to keep close... we are spread all over the place, together we are stronger... The information is only about our eye disorder... we just wanted to know everything... there was a need... and no place to just talk about critical issues.


The thing with mini-ark is that many, so many have left to live their lifes once they got out of the hell they have been living with... They write their words so that there is a "tomb" which will be found by someone else, so that to help others.


Others will come here to give you their experiance and guidance... I can say now that the incisions heal slowly... moving against the cone over several months...  


I wish you the very best mike!


By the way if you wish to read further about Mike's story up until now, you can on the patient testimonal section of:


http://www.miniarkdatabase.com



-- Edited by QuintriX at 23:37, 2006-02-15

__________________


Member

Status: Offline
Posts: 16
Date: Wed Feb 15 8:15 PM, 2006
Permalink   
 

Hi Mike.

First congratulation for your courage to go to Rome for this "adventure". For the most of us ARKer it was one of the best decisions in our life. I hope that you will also get a very satisfying outcome after the complete treatment is finished. This can possibly mean to have some retouches and to wait some months.

My case was completely different to Hari's, who had a quick success. Before Mini-ARK my vision was 1.5/10 and 0.5/10 and the cornea thickness 430 and 390Ám. After the first operation (late Sept. 2004) I could see about 5/10, 5/10. Then it decreased to 3/10 at my left eye while some months (maybe because of often pressing it together to see better; this is poison for your eye!) but later it increased again. Four month later I had a retouch at my right eye and because of microperforating the cornea I had heavy problems and the vision went down at the right eye. My doctors at home spoke about a disaster. I began to loose my faith in ARK and Prof. Lombardi (please forgive me ;o) but he could convince me (thank you very much) to wait some weeks and months for an improvement. Some month later my vision improved indeed. Two or three month after the retouch I could see 9/10 with my right eye! The vision at my left eye increased to 5-6/10 (without retouch).

Two weeks ago I had the retouch at my left eye (one year and four months after the first operation). The operation was very successful and two days after it I had a vision of 9/10 (by the way: all numbers without a correction with glasses etc.).
I forgot to mention that the cornea thickness increased to 430 and 450Ám. Prof. Lombardi said that he felt while making the incisions that the eye structure was much better now.

Allthough I have much more incisions at this eye now, I have even less negative side effects now (ghosting, starbursts in the night)!!! Also my other eye improved after many months concerning the side effects.

I had ups and downs but Prof. Lombardi kept right when he said that I will have a happy end if I would to all what he recommends (I learned about many important things concerning the "alternative" and holistic medicine).

Every KC and ARK story is different, so I can not give you all the answers to your questions... Maybe Prof. Lombardi.

I also had dry eyes before ARK (so I had severe problems to wear lenses what then was no more possible for my right eye). Maybe I still have dry eyes now but I don't notice (without lenses). But I think it became better like my complete health condition. There are enormous differences! But it took many monthes and efforts.

All the best for you, Mike!

Kind Regards
Norbert

__________________


Executive

Status: Offline
Posts: 164
Date: Thu Feb 16 3:09 PM, 2006
Permalink   
 

hey dude, seems like your mini ark was a success, looking forward to hearing more as time goes by :)

__________________
yeup... it's me. :p


Executive

Status: Offline
Posts: 397
Date: Thu Feb 16 5:42 PM, 2006
Permalink   
 

Hi Everyone,
Mike has been kind enough to let me reprint some of his experience on my website.
Check it out on the testimonials page:
Mike's Story

Hari

__________________


Senior Member

Status: Offline
Posts: 122
Date: Fri Feb 17 12:49 PM, 2006
Permalink   
 

Hello Mike and welcome to the site!


It was fascinating to read about your experience, both in this post and on the mini-ARK database.


Whether one agrees or disagrees with mini-ARK two comments you made hold true for everyone


"People deserve to have information and options and they deserve to be able to make up their own minds"


"At the end of the day, no one cares more about my eyes than I do, and no one but me has to live with them in their head. I am an adult and I make my decisions and take the benefits and consequences"



__________________
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.

Post to Digg Post to Del.icio.us

www.kcfreedom.org

Knowledge Works