All of us Vs Keratoconus

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Date: Mon Jul 20 4:10 PM, 2015
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Hi. I've just diagnosed with keractoconus on May actually but it began to process in April. It was finally diagnosed after swells of investigations from doctors and specialists. And during the investigation, I was at first assumed with "probable keractoconus" because I was being dilated. And 2 months later was my next eye check up and it was like from probable became official. I am devastated because my night vision became worse and couple of weeks later after my 2nd eye check up, I notice that I am having trouble seeing things from far even with new spectacle, I got new spec before I was being diagnosed and honestly it was not really blurry but trouble as in, my eyes hurt easily when I tried to focus too much from far. And my aunt noticed that I blink a lot. FOCUSING HURTS. I am going to have an English exam this Thursday and I am afraid to read. I'm still trying to figure out this new symptom that is processing. When I read, I feel like my eyes hurt at the side when I scan. Can is can but it just have that irritation. Photophobia is still there but worse during the night. I wear sunglasses when on highway. Even tho I've seen the doctor twice and I will have my next app next year, my mum is so scared of why I keep looking at things so close that she begs me to see the doctor anytime this month. I am afraid, every eye check up is tense. And every eye check up, I am advised to wear contact lenses but I am not keen on taking care of it. I am afraid, of the news I will received thats why my mum begged. I am only in the beginner stage. I have no clue when will I recover if not for contact lenses. I find it pointless going for eye check up if there's nothing can be healed quickly. Devastated. So devastated that I write every symptom I've discovered in a blog. But I will share it briefly here. Man, eye drops does not recover quickly and to cheer things up, I feel like I need to cry because at the same time my eyes are dry. It's a joke lol. 



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Date: Mon Jul 20 4:13 PM, 2015
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its nice to let things out. :P

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Anonymous

Date: Mon Jul 20 7:14 PM, 2015
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Hey man i like you was just diagnosed a few weeks ago and i feel like my nighttime vision has changed overnight with all lights looking bad and everywhere. I am devestaed to but theres lot of people going through this and that get through so try keep your head up man. Im having crosslinking done in few weeks look it up is only thing that can stop this proggressing worser. Your only at the early stages like me. well my left eye went terrible over night man eveythings blurred in that eye but we will see how things go after crosslinking then try contact lenses. I hope things go well for you mate.



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Date: Mon Jul 20 8:05 PM, 2015
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I would suggest the following:

- Visit a Dr called Jenny Deva, who is an ophthalmologist (in Malaysia) as well as being a contact lens specialist. Dr Deva certainly knows on the challenges facing KC patients. You need a professional who is up to date on the options and offers both optical and medical treatments, so all can be concidered for your patient case.

- Dr Deva is one of the pioneers in Crosslinking for Keratoconus. Its the case of it being the earlier the better to treat progression of the condition.

- Research the options. Its your eyes and you must do your own patient research.

- Keep your progression checked.

Good luck and let us know how it goes.

Kane



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Date: Tue Jul 21 4:19 PM, 2015
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Does cross-linking hurts? Yeah was advised to do cross-linking almost everywhere in the forum... Yeah, I know its annoying to complain online but I feel like every KC patients really need to share every time the symptoms grow. My struggle now is reading! Its weird how my Opthalmologist didn't mention that yet, probably because I'm not ready? I have it on both eyes btw. Keractoconus is also the most difficult thing to explain to people. Sometimes it effects my work and I am embarrassed to say it to my seniors when I need to go home early from work to rest my eyes. My job scope requires to stare at the computer for 8 hrs in the news room. Oh, will this hasten the progression? The hurftul feeling when people say to you if you see things wrongly, "are you blind!!!" "Please read it properly...."

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Date: Tue Jul 21 4:22 PM, 2015
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Also, I wonder what will my doctor say abt my reading problems... Will I annoy her? Hehe

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Deb


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Date: Tue Jul 21 6:50 PM, 2015
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If you see a well known KC specialist they will be converse on the troubles you having. Additionally, I am thinking if Dry Eyes has been ruled out for some of the symptoms your having ?

Keep the faith, in yourself, that you will find a solution you are happy with. It will take time but the sooner you find a specialist you can work with, the better.



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Date: Tue Jul 21 11:02 PM, 2015
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KC21, The important thing to do now is to find an eye care professional who enjoys working with KC patients. You are going to be spending a lot of time with them so find someone you feel comfortable with and who has the expertise, the patience, and the special things like specialized contact lens fitting sets needed to deal with KC. If you are worried about annoying your doctor you need to fix that. You will have bigger problems to discuss with your doctor than problems with reading.

Many KC patients are able to achieve pretty good vision when fit with the right contact lenses. But that is likely to involve a lot of trial and error. It can be time consuming and costly. However, once you have some improvement in your vision, KC won't seem quite so crushing.

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