All of us Vs Keratoconus

Members Login
Chatbox
Please log in to join the chat!
Post Info TOPIC: newbie


Veteran Member

Status: Offline
Posts: 28
Date: Sat Aug 22 5:52 PM, 2015
RE: newbie
Permalink   
 


I did ask whats wrong with my eyes and they keep answering that its progressing but idky I feel as if I don't received enough info like I'm not satisfied and the only answer for me now is to wear either rgp or sceral contact lenses to slow down but do you think it will reverse the progression? honestly about corneal cross-linking, my doctors didn't even offered that to me so I was shy to argue their suggestion. *sigh* i want good news but anyways to cheer me up, I got an interview from the uni that I wanted and my best friend is getting married. yay!

__________________


Veteran Member

Status: Offline
Posts: 28
Date: Mon Aug 31 5:24 PM, 2015
Permalink   
 

guys!! no more worries! i know my progression is getting worse and yet, I'm still not the best candidate for Corneal-cross linking... so my doctors forced my mum to let me wear it and they both push me to learn to wear it and I finally can put in the contact lens myself!! im so proud! :D gonna get it by this week and waits for it to get ready for the next 2-3 weeks. i really hope, this sceral contact lens will at least stop! i know its slowing down but please stop progressing cuz every month, i go for eye check up and received bad news and my mum is like irritated.

__________________


Member

Status: Offline
Posts: 5
Date: Fri Sep 11 2:55 AM, 2015
Permalink   
 

keractoconic21 wrote:

Does cross-linking hurts?


I had epi-off X-linking and left the doctors's feeling fine. But it quickly turned into a really bad sunburn at home. I paced around a couple hours and couldn't sit down. This scared my GF but finally I was lucky enough to fall asleep with the prescribed hydrocodon and woke up the next day fine. I think the doctor was surprised at the recovery, so YMMV. The cornea heals really really quick though.

I know how it feels to be diagnosed. There's probably no word in the english language to describe it. 



__________________


Veteran Member

Status: Offline
Posts: 28
Date: Sun Sep 20 6:11 PM, 2015
Permalink   
 

wow yeah. when i first get the official diagnosed, i was beyond stunned & my cousin notice that it kinda breaks my heart cuz i keep complaining w sore eyes alot till im used to it. im still waiting for my contact lens to be ready. congratz on finishing the crosslinking procedure tho! I still wonders why my doctors kept saying it won't recover. wtf. anyways, while waiting, my best friend started seeing that my eye bags are developing now eventho ive slept and it has been there for 3 days. im gonna complain this to my doctor after it develops starburst/contrast trouble. it still worries me but thank god i know how to calm myself.

__________________


Veteran Member

Status: Offline
Posts: 74
Date: Wed Sep 30 10:19 PM, 2015
Permalink   
 

keractoconic21 wrote:

I still wonders why my doctors kept saying it won't recover. 


I think your doctors are trying to tell you that KC is a progressive disease. The cornea just keeps getting worse. At best the progress of the KC may stop. Cross-linking is to slow or stop the progress of the KC, not to reverse it. KC never "heals." No matter what you do the cornea is not going to recover its normal shape. There are some experimental techniques that try to restore a more normal shape to the cornea. But, for now, you have to accept that there is no cure for KC and you have to learn to cope with the visual problems KC creates. Maybe that will change someday. In the meantime, you need to find a way to live your life now.



__________________


Veteran Member

Status: Offline
Posts: 28
Date: Thu Oct 15 5:31 PM, 2015
Permalink   
 

hi! yup. I take back what I've said and regrets being worried cause I sacrificed some time for my eyes and I finally know how to put on eye drops and control the itchiness by myself. Last Monday, I went to the Optemitrist again & finally it was good news at least that "the progression is beginning to slow down but its still bad because I didn't really rub my eyes." I've learned something new that the more I rub my eyes, the faster it will progress. And after weeks of practice putting on the Sceral contact lens and weeks of waiting for it to be ready.. I am now finally wearing it all by myself. Everyone was happy :) My optemitrist was like, "you should have seen your reaction the first time..." haha. I'm so proud. I have input more knowledge, knows how to put eye drop and sceral contact lens now! was all worth the practices! But is it normal for the eyes to be red when wearingg contact lens? the red is worse after takin out tho. oooo I love the feeling of wearing it! my eyes feels sooo gooood! and I am also no longer afraid of the dentist. wow I've overcome lots of my fears. was hard work ;)

__________________


Veteran Member

Status: Offline
Posts: 28
Date: Mon Oct 19 7:39 AM, 2015
Permalink   
 

Instead of me putting in blogs which I'm getting lazy at it... I would rather volunteer the blind and would have great opportunities in the future as well. I'm volunteering here soon in November, I needs to feel good about myself! savh.org.sg/help_vol.php

__________________
«First  <  1 2 3 4 | Page of 4  sorted by
 
Quick Reply

Please log in to post quick replies.

Post to Digg Post to Del.icio.us

www.kcfreedom.org

Knowledge Works