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Post Info TOPIC: Sceral Contact Lens works!


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Date: Thu Dec 3 12:51 PM, 2015
Sceral Contact Lens works!
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Again, I was diagnosed in April and after struggling to learn how to put on eye drops on my own and wearing contact lens on my own, I finally could and I've been wearing contact lens for almost two months and my optometrist told me that my eyes are finally fine. The progression is there but it has been controlled, so no changes ever since the last checked up and I honestly swear I love the vision. Then at mid-november this year which is last month. (WOW DECEMBER ALREADY) I've been diagnosed with hypoparathyroidism. My optometrist told me that keractoconus and hypoparathyroidism doesn't have a related link but lets hope I won't get cataracts or any other eye problem, I'm still waiting for my next appointment to finally get a treatment. It's not nice, I feel like I'm bout to die everyday. And wearing contact lens with this disorder is struggling as well tho because I'm always getting tired and you can't sleep with it! My optometrist doctor told me that, thats not an excuse. With vitamins, I can control but doesn't last long. Ha, I'm so stress with my health :( But I keep getting words of wisdom about health. If you have any words of wisdom you would like to share please do. 

 

2 illness in a year!! *cries*  



-- Edited by keractoconic21 on Thursday 3rd of December 2015 12:53:34 PM

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Date: Thu Dec 3 4:09 PM, 2015
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Both are stressful conditions, so rest up as much as you can. There seems to be a causal link between the two, but more studies are needed.



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Date: Fri Dec 4 2:55 AM, 2015
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Yeah, I've been doing studies as well. Research says that one of the symptoms of hypoparathyroidism is an irregular shape of cornea and then my optometrist says that maybe my eye muscles could have been weakened because hypoparathyroidism may cause hypocalcemia and with low levels of calcium, none of our muscles in our bodies are strong and then again my optometrist still says that its not a related link. Honestly, from keractoconus... No one can find out whats the real cause but one of it maybe family histories of bad astigmatism... Still... Even if its genetic, no cause were found and same goes to hypoparathyroidism so I'm in the division of "idiopathic autoimmune hypoparathyroidism." Wow the root of my illness is unknown. 

When I need luxurious sleep then I rest up a lot, otherwise I'd control it. You normal humans slept for 8 hrs and feels fine. For us, no matter the amount of naps we had, we are still exhausted. My urgent luxurious sleep is like I slept 12-15 hours at night and wakes up late noon unless if I sleep before 11am then I can wake up at 6:30am. Then I still had nap in the afternoon for 3-4 hours and still tired. 

Now with this condition, I took a break from work. I'm hoping next year my lethargy will at least worn off. Before I resigned, I didn't really understand the symptoms and when I go out with my friends, everyone says I looked exhausted and that the way I talk almost seemed breathless. I can force myself so when I do-- that's what will happened, it can effect people somehow. But my people have been supportive. The point is, I'm sick of resting. When tetany strike, I can't force myself. Just sharing with everyone, our contact lens can't keep taking it off and on cause our eyes will be burning red. May cause infections. I am really tired.

to learn more: https://rarediseases.org/rare-diseases/hypoparathyroidism/ 

 
 
 
 
 


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