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Post Info TOPIC: My experience with KC contact lens fitter


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Date: Wed Jan 27 1:41 AM, 2016
My experience with KC contact lens fitter
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I was diagnosed with advance KC in 2006 While my regular eye check up for glasses. When I hear first time I didn't know even what is Keratoconus. Doctor made me understand what it is and he told me I won't get good vision with glasses any more, I need to see a contact lens fitter to try hard lens for good vision. I found contact lens fitter in New York and I started visiting them, She tried different RGP lenses for a long period of time, but  never gave me comfort and always left me with scar in my eyes. She tried piggy back and hybrid lenses nothing work out in 1 year. I gave up on RGP and left with bad vision. In 2008 I went to india for vacation and I saw the corneal specialist and he informed me about CXL to prevent further distortion and prevent progression. I went through CXL. and it did prevent progression. My right eye had very advanced KC so it was close to very less vision, so to improve my quality of life I decided to go for ICL in my right eye. After that I came back to US to complete my study. After completing my study, I decided to try scleral lenses as I had saved enough money for it. I went to Dr Chang (in newly jersey cornea institute) for sclera like lens fitting. He is very intelligent and knowledgable person I have ever seen with lens fitting. He understand pretty well about our vision problem, and his each lens has good improvement during fitting process. He got me good vision after 5 years of suffering. I was doing pretty good with his lenses For 2 years and meanwhile I move to Dallas, TX. my insurance do pay for sclera like lens every year so I decided to get new pair. i found dr Bank in Dallas who do scleral lens fitting. My nightmare start from here.. Before I was wearing Jupiter and he was working with Zens- lenses so he was trying that but problem was those lenses were too tight and hard to wear all day. He was just focusing on vision not on comfort or eye health.As KC patient we need balance, without comfort i won't be able to wear that lens for 12 hours. But still he was trying on his knowledge without considering my eye situation and without listening my problem. And always insist me to go for corneal transplant and he will refer me to corneal surgeN. After trying different lens for 3 months nothing work out well so I told him to order me JUPITER LENS, what I was wearing before So at least I have a fresh pair. I do see 20/40 with my Jupiter lens but I don't have good far vision that makes difficult to drive even during daytime, night driving is impossible. Now again after an year I decided to get new pair of scleral lens and thought to try new fitter. I found another lens fitter Dr steven Kurtin.i already mentioned him my previous experience with fitter and what I expect. Very first time he was so confident that he will get me good fit lens in just one visit, as KC patient for so many year I know that that's not possible. He told me He will try some new sclera like lens, as he describe me Jupiter is very old ( if I ask Jupiter lens now it's like I ask doctor to prescribe me erythromycin- old antibiotic). I told him he can try what he want as far as I get good lens. He started trying me GEnesis  Scleral lenses, first time I hear the company name. It was not working out for me even after coupon of pairs. to fit scleral lens in KC patient eye it really need expertise. The lenses he was giving me, he was forcing me to believe that i see very good with this lenses and that's the most rediculous thing ever happen to me. And the lenses he was giving me that was living molding(complete dark red tissuse) on lower side of eye where lens stays after taking off lenses. Than he started telling me that my old jupitor lenses were more tigher than what he is giving me.He was trying to tell if you can wear those tight lenses than why don.t I wear his lens. He was trying to convience me by showing the report that see his lens has good fitting than my Jupiter lens. As a KC patient i know that my old lens fitter used to check the space between my cornea and lens surface by using machine as well as by putting flourencent dye. And if your machine show that thats good fit but as I wear that so its matter that how comfortable i feel and what vision I am getting. With his lens I was getting more clear vision but with lots of ghosting and shadow, thats mess up everything. Than he started blaming previous doctor that his lens were too tight and it molded my eye in that shape thats why he is not able to get good lens for me. After that he started blaming my right eye ICL that giving me shdow and halos. than he told me, he can try to put glasses on my contacts to improve vision, i said ok i will try if that work fine for me. He wrote me prescription to make glasses and he was telling me if I make this glasses with only material he wrote and all that special feature than only i can use that glasses, so moral was i made glasses from him and he told me $350 for glass only no frame. I told him, u were trying lenses nothing is working out and i don't want to spend this much money without any guarante. That i will see better, if i don't feel comfortable with that glasses than i will just waste my money, so i told him, i will get the glasses but not made with special material and if i am confortable than we can make the glasses as see said.( b.se i know special material was for antiglare that helpa at night). i made my glases and I tried to wear it on my lens, it was not comfortable at all b'se I was seeing everything too close to me and feel like everything is moving around you. So basically he need to adjust power for it to balance betweeen 2 eyes. I called him to explain what problem i am having, now he started blaming my glasses that may be your glasses are not made it correctly. And that was the last talk with him, b'se he was ridiculous, blaming other people all the time rather than doing some improvement or even i don't mind if he say he can not help me further. On top of that he created too much phobia in me that your jupiter lenses are not good and u should not be wearing it. I can refer you to corneal specialis... You go see them. I told him 1000 times that i am not considering any surgery or even small procedure on my eye untill I will get vision with lenses. I know very well even after keratoplasty i have to go through lens and i don't want that in future other doctor will get one more reason to blame for their failure. 

     Everyone can not fit lenses to KC patients, its really need good expertisE. Again i need to look for onr more doctor, but I am tired with all these bad fitter and their attitude eventhough they don't know what they r doing. 



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Veteran Member

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Posts: 53
Date: Wed Jan 27 7:14 AM, 2016
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Sorry you have been around the merry-go-round with contact lens fittings.  The costs are far too much, the pain and limping along with low vision is misery. Your previous Dr who fit you with a jupitor lens seems like a very good Dr indeed. Cant you go back to him ? I know there is travel involved but it may in the long run be better of and get spare lenses from him too



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Date: Wed Jan 27 4:41 PM, 2016
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Thanks for concern Megan. Cost is not a problem, as My insurance pay everything, I just pay $60 out of my pocket for new lens every year. But it does take too much time as I have to make around 10 visits to get one lens fitted and at the end still you don't get something good. I would like to go back to my old doctor in NJ, but now I live in Texas and also my insurance won't work in NJ. Also Its not possible to make 6-7 visits to NJ while working and have a baby at home. I wish I can find good Contact lens fitter in DAllas area.....

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GRS


Optometrist

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Date: Thu Jan 28 1:11 PM, 2016
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The problem with getting good vision in advanced keratoconus is the presence of high levels of higher order aberrations. These are measured with an instrument called an aberrometer. The information from the aberrometer can be used to create better optics to further reduce the higher order aberrations. This is the technology behind our Laserfit lenses. Unfortunately, corneal inserts, or Intacs can complicate this picture and make the aberrations even more difficult to correct. In reality, the only way to correct them is through the wavefront-guided lens, which we have worked very hard to achieve. It's not always perfect, but it is almost always much better.

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Dr. G.

www.laserfitlens.com



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Date: Fri Jan 29 6:15 PM, 2016
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Thanks for Good Explanation Dr G. Rightnow I am pregnant and due in march end. So after that I might want to try your lenses. I have some questions regarding The lenses you provide. How is it different from Scleral Lens? Is it fall under lens or kind of prosthetic device? How long this lens last? ( I mean when it need replacement). Just in case If I am not able to get better vision or Lens is not suitable for my eye, still do I have to pay for my Lenses? Is there any long term side effects of wearing this Lens ? (like ocular Pressure change or edema in eye)... Do I need to go with glasses over my lens to improve vision? If I want to send bill to my insurance than you guys provide all paper work regarding medically necessary Lenses? and Do I have to send bill to My vision plan or MY medical plan? And since 2 months biggest problem I am having with my right eye with lens is that I see little fog (get vision like blinking eye, eventhough I am not blinking) all the time. Local patients also has to come everyday straight while fitting process or you are litle flexible in that?


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Date: Fri Jan 29 10:58 PM, 2016
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If you want you can send me details on my email cmpatel0227@gmail.com

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GRS


Optometrist

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Posts: 31
Date: Sat Jan 30 3:05 AM, 2016
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cmpatel0227 wrote:

Thanks for Good Explanation Dr G. Rightnow I am pregnant and due in march end. So after that I might want to try your lenses. I have some questions regarding The lenses you provide. How is it different from Scleral Lens? Is it fall under lens or kind of prosthetic device? How long this lens last? ( I mean when it need replacement). Just in case If I am not able to get better vision or Lens is not suitable for my eye, still do I have to pay for my Lenses? Is there any long term side effects of wearing this Lens ? (like ocular Pressure change or edema in eye)... Do I need to go with glasses over my lens to improve vision? If I want to send bill to my insurance than you guys provide all paper work regarding medically necessary Lenses? and Do I have to send bill to My vision plan or MY medical plan? And since 2 months biggest problem I am having with my right eye with lens is that I see little fog (get vision like blinking eye, eventhough I am not blinking) all the time. Local patients also has to come everyday straight while fitting process or you are litle flexible in that?


Laserfit is just a special type of scleral lens.  The website www.laserfitlens.com has a nice video that explains it quite well.  It is but a more advanced type of scleral lens where the shape and fit is determined by your eye shape.  We use a high resolution FDA approved scanner called an OCT to scan the shape of your eye to obtain a digital mold.  We then design the lens to match the shape of your eye.  This generally results in a very comfortable, well-fitting lens very quickly.  We then scan your eye with a device called a wavefront aberrometer, which gives us the output to correct the higher order aberrations.  We then incorporate that information using mathematical formulas called Zernike polynomials to obtain the optics for the lens.  Everything is corrected with the lens so no need to wear spectacles over the lenses.  At no time do we put a trial lens into your eye from a kit.  Truform Optics in Hurst, Texas manufactures the lenses.  Otherwise, the size and material are similar to other scleral lenses.   I have never recorded a pressure increase for patients upon removing the lenses, and I have checked many.  We use only modern materials with the highest oxygen permeability to avoid corneal edema.  Reducing or eliminating the fogging behind the lens is basically a lens fit issue, and because we can adjust the fit so precisely, this problem is either eliminated or greatly reduced.  Of course if your eye is dry then that needs to be worked on.  We try to match your schedule.  If you desire to have the shortest possible turnaround, we will see you everyday.  The schedule is determined by your availability.  Our technology is patented and state-of-the-art, and so there should be no problem getting a good fit.  Of course everybody is different, so I won't make any guarantees for anybody.  Unfortunately there can be no refund because of the time and expense involved, but it should be possible to know with the first set or lenses whether it will work for you.  Basically you are buying my time, expertise, and technology to give you the best possible result and everything is custom just for you.



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Dr. G.

www.laserfitlens.com



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Date: Thu Feb 4 2:45 PM, 2016
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Thanks Dr G for reply. I will come to your clinic after my delivery.

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