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Post Info TOPIC: I really need some help and support


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Date: Thu Dec 21 8:34 AM, 2017
I really need some help and support
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Hi Jim, again thank you for the response. I am looking into the Kerasoft IC and was wondering if they would fit me. I would say my KC is on the mild-end to somewhat advanced stages. Hybrid lenses from Synergyeyes gave me great vision it just wasn't comfortable. Didn't like the GP part of those lenses. I spoke to another doctor, and she recommended scleral lenses. Aren't these just a bigger hybrid lens? People say they're comfortable, but damn they're just big as hell and seem daunting to put in lol. Again thanks for your immediate responses guys. You've all been helpful and informative :)



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James Polis


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Date: Thu Dec 21 5:40 PM, 2017
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Kerasoft IC is completely soft. Scleral lenses are completely hard. A Kerasoft IC is pretty big, as are all soft lenses. I think some scleral lenses are bigger than the Kerasoft IC but not by too much. What I have heard is that soft lenses are comfortable because they are big, not because they are soft. The sclera (the whites of your eyes) is not as sensitive as your cornea. I think your eye lids rub against the edges of the lenses less when the lenses are larger. I imagine it does take some effort to learn to put scleral lenses in and take them out. But people say it is pretty quick once you develop the technique. It took a bit of time to learn how to put in, and especially to remove the Kerasoft IC. My guess is that the seam between the hard lens and the soft skirt of the Synergyes was causing the discomfort.

Finding contact lenses for KC is hard because it doesn't seem like you can get close and just "dial it in". It's more like you take a shot and see if you hit the mark. If you didn't, you don't learn too much from the miss about where to aim next. So keep trying. There probably is a good lens for you out there somewhere.

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Posts: 8
Date: Wed Jan 3 9:31 PM, 2018
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Hi guys, again thanks for all the support and advice. I genuinely do appreciate it. I have a few more things I want to add and update you on and would like any advice if you believe it will have some merit for me. I recently saw another doctor, and she told me that scleral lenses would be way more comfortable and to try them out. After her visit, I contacted someone in my area who fits scleral lenses and will be seeing him soon. His office also provides Kerasoft IC lenses which to me seem like a better choice. Some of the questions I do have are the following: Are scleral lenses a life changer? I have been doing my research, and many say it has helped them a lot. Is the vision that superb? Are some people not a candidate for these types of lenses at all? I am assuming it depends on the severity of the KC. Also, what questions or concerns should I bring up to the fitting specialists especially regarding types of scleral lenses and what not. I am honestly really frustrated recently because I believe my unaided vision is getting worse :/ It has become so much harder to see text even on a computer screen. Everything seems to get more and more fuzzy at times and then there are those days which are a bit better. It's weird cause I had CXL done and have been told my KC has stopped progressing but when you wake up in the morning, and it's much more difficult to make stuff out (than is the usual...) it begins to make me extremely worried. Thank you again, guys and I hope you all have had a happy holiday's as well.

-James

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James Polis


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Date: Fri Jan 5 5:57 AM, 2018
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Well fit contact lenses are the game changer. The particular type of lens is not the direct game changer. It seems that most KC patients get a better fit with scleral lenses. But its the good fit more than the lens type that changes the game. I would encourage you to try not to second guess you fitter on lens types. What you can do is try to be a good observer and reporter on how the lenses feel and how the vision is with them. There is stuff you can feel and see that won't be easy for the fitter to detect independently.

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Date: Sat Jan 6 5:35 AM, 2018
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Hmm ok. Well tbh I was first given hybrid lenses, and they gave me good vision, but they just weren't comfortable. I also had problems with double vision and even triple vision, and I even had to squint with my contacts in to mitigate this. Will sclerals do this as well? I mean whats the point if I can still see double and distortions lol My last contact fitter said that it was normal and that it would fade (both the discomfort and the vision problems with the contacts in.

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James Polis


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Posts: 74
Date: Sun Jan 7 8:15 PM, 2018
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AFAIK all KC lens fittings involve fitting a trial lens and, once a seemingly satisfactory fit is achieved, doing an over-refraction to determine a prescription for the lens to get the best possible vision. My impression is that how well your vision can be corrected depends on some of the minor aspects of the lens fit, aspects that may be hard or impossible to observe or measure. I think it is sort of like trying on shoes. They can all be 10C but some will be more comfortable and some will be better for walking or running. If you are still seeing double or triple in the over-refraction, then an ordered lens is almost certainly going to do the same. Getting to the end point of an over-refraction takes time. It takes a dedicated and patient fitter to go through the fit and refract cycle for the number of times that might be necessary for a KC patient. This is further complicated because there is no way of knowing at the outset what the best possible result is. But, to be blunt, I don't have much respect for a fitter who says discomfort and poor vision are normal and that'll you'll adapt. I don't think they have any idea what kinds of "discomfort" (more like all consuming pain) and poor vision (more like functional blindness) a KC patient can be struggling with. Like a starving man in the desert, a KC patient will initially be grateful for any visual improvement. But uncomfortable lenses won't offer long term relief no matter how good the vision. Nor will good vision overcome an uncomfortable lens. So you have the difficult task of finding a contact lens fitter with the patience and skill needed to find contact lenses that you can wear comfortably and that provide you with the vision necessary to lead a normal life.

To directly answer your question, yes scleral lenses, and other lenses, can correct multiple vision. But it isn't a slam dunk automatic result. I don't know if it can be done for every patient or just some. Basically, you don't know until you try. And just because one fitter can't do it, doesn't mean that it can't be done.

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Date: Tue Jan 16 6:36 PM, 2018
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I have mild to moderate KC and with glasses, I see 20/25 so am able to manage though night driving and vision is a problem. I tried using hard RGP and scleral lenses but they ended up hurting my eye. I went to see Dr. S at the UC Berkeley optometry and she did a great job fitting me with Kerasoft lenses. I get 4 pairs for a whole year and replace them every 3 months. Initially, it was hard to just get them out of my eye but she taught me a few tricks to put them on and get them out really easy. It took her 5 sittings but she managed to get the perfect prescription for my left eye and an almost good prescription for my right eye (my worse eye). These soft lenses have really helped me and with enough lubrication, they do not dry my eyes. I can work on the computer and go about my day. And they are covered by insurance (I have VSP) since they are medically necessary. HTH!

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Posts: 8
Date: Mon Jan 29 8:39 PM, 2018
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Hey guys, thanks for all the help so far. I am going to be getting fit with scleral lenses within the next two months. The doctor I am seeing has a booked schedule, but he thinks he can help me. I don't know what the numbers are for my left eye, but my right eye uncorrected is around 20/400... do any of you know if this is possible even to fix to say 20/40 or better corrected? I should've asked the doctor this question, but for some reason, it never came to me. I was also wondering (maybe I'm crazy, I don't know) have some of you had days where your vision uncorrected (no lenses or glasses) was just bad and then other days after waking up it is somewhat ok/manageable?

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James Polis
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